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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

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@taterjoy

HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom had a bad case before it was an official "diagnosis" in the medical literature. She visited Mayo (Rochester) in the later 1970's and was diagnosed with Fibro. She took small doses of Elavil (10mg) daily for years, which helped her tremendously. She was also told to avoid foods in the nightshade family, which helped. They also recommended weight loss--a diet with lots of veggies, lean proteins including dried beans (lots of complex fiber) helped her the most.

She has learned that a firm seat is much better for her than a soft, cushy seat. She made a wedge-shaped cushion that is VERY firm to use in the car and when out of the house. She also feels that her pain is much reduced when her sleep is better quality. When her fibro flares, she can only lie down or stand (not sit). I pray that a cure will be found, and that you will experience many more "good" days ahead.

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Replies to "HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom..."

Thank you for your thoughtfulness. I am hopeful for a cure too.

@taterjoy
I really appreciate your tips and sincererity. Thank you. What type of med is Elavil? I've heard of it, but that's all. Have a nice day 🙂

It is an antidepressant at high doses, but can be used for enhancing sleep "quality" at lower doses. My mom was able to sleep better, and hence, her fibro was less disabling.

I just visited the website for Mayo Clinic "Fibromyalgia" and see that Elavil remains in treatment options for fibro for sleep-related issues. The generic name for Elavil is "amitriptyline." Here is the excerpt on TREATMENT of fibro from their website: http://www.mayoclinic.org/diseases-conditions/fibromyalgia/basics/treatment/con-20019243

I pray for better days ahead for you, @clownscrytoo, and for everyone posting on the topic of Fibro.

Thanks for your words After this flare is gone I'm going to see rheumatologist about Elavil back in80,s tried it didn't seem to help them ,I don't think I gave it a chance.

Get the right doctor and you will see the difference. Mine is outstanding.

@lioness

I tried amitryptaline (Elavil) once a few years ago and my blood pressure shot sky high. Just be aware that for some people this happens. I had to stop taking it. Otherwise, I know others who use it and find it very helpful. I hope you find relief.

Gail B
Volunteer Mentor

I,!'ll keep an eye on my blood pressure thanks for the information.

I tried amitryptaline and gained 10 pounds in a WEEK! No thank you.

Thanks I,ll have to watch my weight then @ B.P

Lioness. Meeting with a Rhematologist will be best They will always do blood work up and check your blood frequently to make sure you are not damaging some internal organ with the drugs you need to take. My drug is pretty strong and is also used for Cancer. The first 7 weeks I was miserable and I as well as my children thought what could possibly be the benefit to using this drug? But, now I have adjusted and will be injecting it on my own once a week. Injecting will eliminate the nausea. I was diagnosed with Fibermialga for years and then suddently the RA showed up in my blood. I went for years with no treatment for the RA and I not am facing the result of that. My doctor is doing all she can to make me comfortable.