← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@katiekins

Hello there, yes had verapamil for many years and still in 40mgs am and on. After my mini mitral replacement with a small mini myectomy (no scars) but very painful and a long recovery and am in week 14 this coming Monday. Minimally invasive often means more pain as they have to cut under right rib to gain access and under right rib. Verapamil slight constipation and little fluid around the ankles. Camzyos a completely different drug (as you say verapamil treats the symptoms) it apparently stops the hyper activity of the heart therefore thickening and gradient comes down but does have a black box warning. I took it for a week but it just didn’t suit me sadly. That’s my way of describing it, do hope this helps. Good luck. What age are you ish?

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Replies to "Hello there, yes had verapamil for many years and still in 40mgs am and on. After..."

Thanks so much. I am 73 and new to all of this although it appears that I have had HOCM all my life! It sounds like the verapamil helped you for a long time and that you tolerated it well - anything else I should know about it? Also, when you say that the Camzyos didn't suit you - can you tell me a bit more about what you mean? Thank you again.