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Living with Parkinson's Disease - Meet others & come say hi

Parkinson's Disease | Last Active: Dec 7 2:32pm | Replies (532)
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@jaybee51

Thanks Teresa, I can’t believe your description of your gait: it’s almost word for word how I described my gait “my brain doesn’t seem to be connected to my legs”. I told this to 3 different doctors and even suggested possible Parkinson’s and not one made the connection (even though I noted several other non-moter symptoms.
Anyway, after taking Carbodoba/levadopa, my brain seems to be connected to my legs again.
I am now officially enrolled in a Virtual group meeting that starts in January.
My worst problem now is back pain and I have an appointment with my pain specialist tomorrow. Am curious as to how much if any of the pain might be caused by PD. Do you have any thoughts or experience with back pain in PD patients?
Thanks for the additional information sources. I’ll check them out. Jim

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Replies to "Thanks Teresa, I can’t believe your description of your gait: it’s almost word for word how..."
Teresa, Volunteer Mentor | @hopeful33250 | Dec 6 1:21pm

@jaybee51,

Unfortunately, pain and stiffness are part of the PD experience. However, you need to have the back pain checked out. I'm sure that your pain specialist will look into different reasons for your back pain and help you find a solution.

I appreciate your comment about mentioning your leg/brain connection to several doctors before the diagnosis of PD. It often takes several years before you come up with the diagnosis of PD. For me, it was about 10 years. Persistence pays off if you stay with the process

Is the back pain a recent problem or have you had it prior to your PD diagnosis?

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