Migraine: Did botox work for you?

Posted by johnetteg @johnetteg, Nov 25, 2018

I had Botox injections for migraines 2 1/2 weeks ago and have been feeling sick. My vision is blurry, I have pressure in my head, I’m lightheaded, I’m having heart palpitations, high blood pressure and heart rate, my stomach has felt sick, I’m having trouble concentrating and focusing. Has anyone else experienced this? It’s really starting to scare me.

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Profile picture for kpickowitz @kpickowitz

I am finding that they are very expensive and not all are covered. At $1-2k a month, my medicare with additional drug coverage with the doctors valudation forvuse is still $600 for one injection.

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Oh my! That is expensive indeed! Medication costs are prohibitive in the US. I live in Ottawa, Canada, and my insurance covers 80% of the balance that is not covered by the province. I do hope you find a solution to your pain! Take care

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Profile picture for gracie2020 @gracie2020

I too am using aimovig injection I started at a low dose and after a year it wasn't working for me so my GP increased my dosage to 140 mg/ML and Ubrelvy 100 mg as needed between monthly injections. It is working for me so far so maybe this may work for you. Wishing you the best.

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I did the same thing and like you it did work for awhile but then it stopped again. Waiting now to get approved for a pain clinic. Hopefully there is something else I can try.

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I’ve been informed by my neurologist that Botox is used only when migraine headaches are or become chronic - 15 or more days a month. When you are having that many bad migraines a month you may also be experiencing the other manifestations of migraine like stomach distress or dizziness. I do.
I’ve just started Botox bc my headaches became daily. I’ve
not had any symptoms beyond what the migraines cause.
No success yet in reducing daily headache but it takes a few attempts to determine.

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I did two rounds of 78 shots. Did nothing so I stopped because I worried about my eyes. I have macular degen and glaucoma. Doc said she would put them in the back of my head but they are still toxic and I worry.

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Profile picture for Sundance(RB) @sundance6

Has anyone ever had Botox administered for Migraines?
Sundance

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I have been getting botox for the last 10yrs for migraines. I go every 4 months. Works out great for me. Good luck to you.God Bless!

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First off I’ll a 75 year old woman so we can rule out stress and hormones. I have daily migraines starting in the early morning, increasing whenever I put my head down or sometime just happen. I can feel the train pulling into the station one might say. My neurologist does Botox every 3 months, prescribes painkillers, but my pain is the strangest yet. It’s moved to the bridge of my nose and is debilitating! Cannot wear my glasses. Any and all suggestions welcome. Imitrex helps some, but daily seems excessive!!!!

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Profile picture for jescott54 @jescott54

First off I’ll a 75 year old woman so we can rule out stress and hormones. I have daily migraines starting in the early morning, increasing whenever I put my head down or sometime just happen. I can feel the train pulling into the station one might say. My neurologist does Botox every 3 months, prescribes painkillers, but my pain is the strangest yet. It’s moved to the bridge of my nose and is debilitating! Cannot wear my glasses. Any and all suggestions welcome. Imitrex helps some, but daily seems excessive!!!!

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Does it matter if you put your head laying up or down on the pillow at all? I can’t face down. Just ask cause I haven’t interacted with others much. Think you said the pain can just happen too? Pick your poison. Sometimes slowly, knowing it’s coming, to, bam, out of nowhere. Never had it at the bridge of my nose but if that’s where it’s bad I believe you. I looked and there’s Sinus migraines but there’s also migraines that cause sinus problems. It’s more than I can get my head around. Migraines, Cluster migraines.
I’ll start with the 1 thing that actually helps my worst pain. Zavzpret. Miracle level for me. Sure it must be horrible for you. Only get 6 doses per month. I really have to decide how bad the level of dying I’m at. It’s fast and it lowers my pain from ‘intolerable’ to ‘I can deal with this’. It’s no fun when it starts to wear off but that’s nothing to the pain it does help lessen in my head.
Stepping back…
Painkillers I took over a year, weren’t strong enough to help so I stopped. Imitrex, didn’t help me but nothing else does either. Been thru everything. Still on Emgality but more out of desperation. Everyone is different. Botox, seared nerve tips, self injections meds worked wonders on some people. Not me. If I found something that helped, at this point, I wouldn’t care, I’d just take it. I’m 67. This all hit me so unexpectedly and hard. I’d take anything .
I really hope you find something to help! Aren’t there some kind of glasses that you could wear?
I hope you find a fix for that…
I never had Botox less than 4 months… when they 1st offered I thought they were joking.😂 I didn’t know they used it for other than beauty(?) stuff
Good luck!

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Profile picture for jescott54 @jescott54

First off I’ll a 75 year old woman so we can rule out stress and hormones. I have daily migraines starting in the early morning, increasing whenever I put my head down or sometime just happen. I can feel the train pulling into the station one might say. My neurologist does Botox every 3 months, prescribes painkillers, but my pain is the strangest yet. It’s moved to the bridge of my nose and is debilitating! Cannot wear my glasses. Any and all suggestions welcome. Imitrex helps some, but daily seems excessive!!!!

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My wife just reminded me I was getting Botox every 3 months 🙄

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I’ve had nose bridge pain. There is a sphenopalatine ganglion (SPG) block for that pain. It’s administered up high in your nose to block the nerve pain. It’s not pleasant to get but can be effective.

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