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DiscussionBurning Mouth Syndrome. I have it very severe.
Skin Health | Last Active: Dec 7 11:26pm | Replies (581)Comment receiving replies
PART TWO response to mudman:
Don't be hindered when a door is slammed in your face. If possible, engage the help from a trusted family member or very close friend, to be present when attending visits; they can serve as extra pair of ears, and can take notes that can be referred to later. (AND TAKE A LIST OF YOUR OWN QUESTIONS, etc.) Needs to be someone who can travel the long, arduous journey ahead of you. Someone who can bolster your spirits when you feel down, defeated.
Please do NOT allow yourself to be swept under the rug!
MORE SUGGESTIONS:
•Since hospital does appear to NOT WANT to respect and acknowledge your existence, let alone having been in their care, I doubt that any Patient Advocacy or Social Services agencies within the hospital will we helpful (if such departments even exist). But TRY ANYWAY. Be firm, persistent, but do so respectfully, unemotionally (a difficult thing to do!), courteously. When told "Sorry, we can't help you with that," counter back with "Well then, can you please provide name of department/person, etc who CAN?" Reach out to both of the aforementioned departments and present yourself in a non-confrontational manner, asking them for help in whatever steps they can provide to you.
•Here in USA, we have government agencies for seniors (age 65 minimum) and the elderly (in 70's and up, the group to which we belong!). They have social, financial, transportation, behavioral health, and so many other ways of helping "us older folks"!😁. But YOU must take the first step in ferreting the info. As I said you ABSOLUTELY MUST SELF-ADVOCATE.
•Keep a spiral notebook by your computer/telephone (I'm fortunate to have a dedicated office, with computer, monitors, landline phone, and area for printer along with plug-in stations for recharging cell phones, etc.). Learned LONG ago, to buy notebooks like the ones grandchildren use at school, and I JOT DOWN info when making calls to insurance company, doctors' offices, WHATEVER! Don't use slips of note pad (can belts, thrown out, etc, leaving you frustrated and no trace of your hard work). I include date, time, name(s) of people, purpose of call, whatever info is given to me. Learn to abbreviate to make note-taking easier. This info is crucial when it becomes necessary to SUBSTANTIATE what indeed was said, WHO said it, etc. ALWAYS ask for name of person with whom you speak. When necessary, I get employee identification number (like when speaking to insurance, hospital personnel, ANYONE).
•If you don't have a small filing cabinet, get a sturdy box or binder, include dividers and I even have those with pockets which can hold items like receipts, etc.).
•Get a medium-small sized sturdy plastic box (got mine at what we used to call 99Cent stores, but can find them at other places). I like the clear plastic b/c I can see what's inside: business cards, etc. of all facilities/people with whom I've interacted. Keeps my desk drawers from being congested and messy. Create "separators" if you wish, to further organize them (or they will wind up "tossed and tumbled", making it necessary to search through them🙄.
•I keep a Contacts file within my computer program, itemizing names, addresses, telephone/email/fax info on each and every member of my Medical Team. I can then add/delete/correct as needed. When info is required by new doctor/facility, it's convenient to just make a print out, thus providing ALL the info. I do this in place of filling out the insanely small spaces on a questionnaire. I just write "see attached sheet". I have such a file also on Past Surgeries. also Hospitalizations, and another for Tests/Procedures. Such time savers, and my arthritic fingers appreciate not having to fill in those hideously tight-spaced forms!
SEE PART THREE (last section of three)
Replies to "PART TWO response to mudman: Don't be hindered when a door is slammed in your face...."
PART THREE, last submission of THREE, to @mudman
Lastly, but of deep importance, here in USA, we have agencies to which patients can report cases of what is believed to have been malpractice, etc. I have prepared a rather detailed, step by step accounting of what amounts to LIES placed into my medical record of events encountered in the emergency department of one of our local hospitals. Lies that refute what actually transpired while I was there for about 2 1/2 hours, scared to death, with blood gushing out my left nostril, down my throat, gagging on blood clots and the taste of warm blood...there is so much that was NOT provided to me, and then told at the end of 2 1/2 hours, "Sorry, there's no ENT available to help you here, so we are sending you to another hospital." Except that the record shows that I LEFT AGAINST MEDICAL AVICE/CONSENT! NO, THEY wanted me to leave, thus more lies surrounding the papers presented for me to sign (which I told the nurse I could not read what was there since I di not have my readers, but she said no problem, just sign and I'll take you out to your husband and you can leave...and so I did, wanting to be out of that nightmare place! NOTHING said about "leaving against medical consent/advice..." There's a great deal more, but suffice it to say that the New York State Dept of Health oversees what happens in hospitals, medical facilities, etc., and when I spoke to them, they indeed were VERY interested in what I endured and the subsequent FABRICATIONS entered in medical records (in itself a legal issue). My point? YOU may have access to filing similar report about your situation and the hospital could well be investigated. AS WELL THEY SHOULD BE. YOU NEED TO FIND OUT IF YOU HAVE SIMILAR RECOURSE IN YOUR COUNTRY.
Okay, I've written a book here. Hope you will make the time to read through what I've provided to you, and find helpful info.
Wishing you the best: Iris🌺🙏🏽