Does anyone have migraine or daily persistent headache?

WOW, do I ever sympathize with you. I have had migraines 24/7 for at least the last ten years. Like you, I have tried every possible therapy out there. NOTHING WORKED - including five different CGRP’s. My neurologist has nothing more to offer me. I cope by allowing myself one narcotic pill, twice a week, taken to coincide with any special activity I may have. So that’s two days of relief a week. I take absolutely no more as they WILL cause rebound headaches - in my case the headaches greatly intensified as I had to take a narcotic for about two weeks after a nasty accident. I hope you find a solution and, if you do, please let all of us poor suffering souls out there know what worked for you. All the best my friend, you are not alone.

Francine
Ottawa, Canada

Many, many, many of us have this. There does not appear to be any one treatment that helps us. My headache is 52 years and still going. Keep trying anything that you can. I wish I could give you better news. 😔 Lin

I was given a cold compression cap as a gift. It does not take a headache away for me, but it does feel good. It fits down over the eyes. It feels cold even without refrigeration but one would get longer time with refrigeration. The cap is called ONLYCARE - Care your care (that is what it says on the cap).
I take BUT/APAP/CAF/COD 50-325-40-30 mg for my migraines and it works wonderful for me. I don't know what side the migraine was on until the next day and that I can handle with a single Tylenol . I get an aura so if med is taken right away it has the time to work (typically my pain doesn't start until 45 mins after aura starts without medication).
Pat

I do the same thing. Save my pain pills for special occasions and otherwise live in pain. Hugs. Lin

I’ve had NDPH For 22 years. There are 326,000 of us globally. Toughest headache that exists. I fit the profile exactly.

I have a headache almost every day. I get stressed out very easily. Get a ha if I
sleep too much or don't sleep enough. Melatonin gives me a headache. The doctor told me if I take pain meds frequently,I could get rebound headaches. I take fuioricet, Tylenol, or ibuprofen. I try to back off of the fuioricet. Also take propranolol. Tried several prescription meds but didn't really work or were very expensive.

Yikes! I thought my 22 continuous years was long. I actually know the date it started, MLK Jr day (back when I could still function enough to work).

Chronic pain is difficult to treat, especially as headaches can have many different causes or, to current medical science, no understood cause at all.

Hopefully if this is a cross you must bare, this will be your only primary health issue for a good long while. Chronic pain is difficult to treat especially when multiple sources react differently to the meds. Ex I have about four non-diagnosis diagnosis, meaning they determine what you have is mostly what could not otherwise be rules out (like lyme disease, etc.). Occipital neuralgia, peripheral neuralgia and fibro myalgia and transform migraines. I've had an internal pump that feeds medications into my spine, this allows lower doses, as they don't get dilated in the digestive system etc, before reaching the optimal location for treatment. It's also supposed to drop the severity of negative side effects. My pump med works well especially for the limbs, joints, and skin. It doesn't knock down the head pain enough to return productive. But, going up on the pump med (Chlonadine) seems to make the head pain worse, at least for a few weeks afterward, so I'm scared to allow them to up that dose.

I too am on Esgic (Butalbital described above). It works much of the time to stop much of the higher level stabbing and brings the general level down. But the effects only seem to last about 2hr and cannot be repeated until 4hrs have elapsed, and really, for me, cannot be taken every four hrs as it does lead to nasty rebound and the caffeine makes getting more than 2 or 3 hrs of sleep, a night, almost impossible.
It also cannot really touch the worst episodes (the pain behavior I associate w/ the episodic migraines that would numb my face, hands, legs, etc., and throb high enough to cause severe nausea, heat, sound, and light intolerance. Those used to last typically 3 straight days.)

If the Drs and specialists you
see seem at all deaf or disbelieving of your descriptions, PLEASE bring someone to act as you advocate. Especially when you see a new medical profession for the 1st time. Current Dr offices might expect a consultation appointment to be scheduled when bringing your advocate. My advocate, my spouse, is MUCH better at describing my current quality if life and how my conditions interfere with occasionally playing the part of a human being.
Kindnof like a note from one's parent/guardian when missing a day of school, everyone, even the good drs, seems to listen/believe (?) her more readily.

I suffered with migraines & daily headaches for years (30+), until I discovered that my body could not tolerate glutamate. Both man made (msg), and naturally occurring.

I discovered that glutamate is in everything from the foods we eat to cosmetics and medications. You have to do a lot of research to find out all the different names the food, cosmetic, and pharmaceutical industries use in their products.
I have been migraine and headache free for several years now.

Thank you!