Neuropathy treatments: How to avoid scams?

Neuropathy has been my nasty sidekick for the past twelve years....it is in my feet and part of
my lower legs....tried ever thing from tens to blue laser ,,,,with no results...after a couple of
years of terrible times, my daughter recommend a combination of hydromorph contin and
jamp-pregabalin...it has reduced my neuropathy from a 8 out of 10 to a manageable 2.
I take 6mg hydromorph at 7am and 7pm,,,,200mg pregabalin at 12 noon and 9pm...
Herbert C Wyness

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Neuropathy has been my nasty sidekick for the past twelve years....it is in my feet and part of
my lower legs....tried ever thing from tens to blue laser ,,,,with no results...after a couple of
years of terrible times, my daughter recommend a combination of hydromorph contin and
jamp-pregabalin...it has reduced my neuropathy from a 8 out of 10 to a manageable 2.
I take 6mg hydromorph at 7am and 7pm,,,,200mg pregabalin at 12 noon and 9pm...
Herbert C Wyness

Has anyone tried the Orthoback Vibrastone?It is a hand held device which vibrates and heats when applied to the area of neuropathic pain, feet for example. It’s on the internet with an explanation of how it works.

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Neuropathy has been my nasty sidekick for the past twelve years....it is in my feet and part of
my lower legs....tried ever thing from tens to blue laser ,,,,with no results...after a couple of
years of terrible times, my daughter recommend a combination of hydromorph contin and
jamp-pregabalin...it has reduced my neuropathy from a 8 out of 10 to a manageable 2.
I take 6mg hydromorph at 7am and 7pm,,,,200mg pregabalin at 12 noon and 9pm...
Herbert C Wyness

Hi John - 6 years ago they did an EMG and saw Severe Axonal Sensorimotor Peripheral Neuropathy, then did the standard checklist of autoimmune and cancer bloodwork and found nothing, do the label Idiopathic was added. I have never had an MRI or skin biopsy, as it’s believed they wouldn’t add any useful information on diagnosis or treatment. The Gabapentin prescription is pretty much the only assistance I get from Neurologist, though sometimes they check my basic arm and length strength, and see if I still don’t have knee/elbow reflexes. The Gabapentin I take comes in a 800mg tablet, and I try to keep them 8 hrs apart. I’m lucky that pain, when it comes, it isn’t a 10, it’s can get to 5 or 6, just enough to know it’s not comfortable and you can’t take your mind off if it, so the medicine can make you maintain at a 0 to 2 all day every day if I’m on a good spell. But if my fingers/toes get cold, that’s the worst type of pain a heating bag and gloves couldn’t cure - the iciness was bone deep, so helpless. That’s the biggest help from Gabapentin for me; it has made those episodes much less frequent and more tolerable when I get a little. Heat like you’re experiencing also happened with me, but to a lesser extent. I can’t avoid the outside temperatures, and I guess it’s because I don’t sweat that makes it tough for me, but it was worse before Gapapentin.

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Surely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.

I believe that the Blueprint for Neuropathy program was a scam for me and several others. Don't waste your 10K on that program. There's a thread about it on this site if you want to know more.