How long do the hot flashes last? Another 3 month Eligard shot today
Hello all. I have completed my 5 1/2 weeks of EBRT for intermediate risk prostate cancer and had first injection of Eligard 3 months ago.
Gleason 7, Stage 2, PSA 8.9. 9 of 17 cores positive. Decipher 0.69.
I am scheduled to get my second 3-month injection of Eligard today.
I must say the hot flashes have been bothersome. I'm waking up every several times a night sweating and multiple annoying hot flashes throughout the day.
Just difficult to sign up for ANOTHER minimum of 3 months of these hot flashes. Haven't had a shot in 3 months and still having as many hot flashes when I first started.
As I wait for injection appointment which is only a couple hours away, I find myself searching for recurrence/mortality rates for those that forgo the second 3 month shot.
I understand there are others that are dealing with much worse than I am so don't mean to be insensitive.
I will continue to search for other posts on this topic but just curious what input/advice others might have.
Thanks to all.
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A fan in the bedroom with a remote control is a game-changer for hot flushes at night. You can get a good floor fan on a stand for well under $100, and he can use the remote to turn it on and off as needed without getting out of bed.
A doctor at one of the conferences I attended recently said that he reduced the fatigue by increasing the prednisone from 5 mg to 7 1/2 mg. I know someone else that increased it to 10 mg and it worked for them. Ask your doctor.
Getting a lot of exercise is supposed to help in reducing the fatigue as well. Weight training and walking daily can really help, and they also offset the deterioration of your muscles that occurs when you’re on Zytiga and Lupron.
+1 for exercise. And it doesn't have to be intense -- with weights, while it's always tempting to keep going up, I find I get the best results from light weights with lots of reps rather than heavy weights with fewer reps. And for exercise, 10,000 steps split into 4 separate walks is just as good as (if not better than) a single walking marathon every day, and is less likely to trigger hot flushes from overexertion.
I understand your comment about using lighter weights, But there are situations where you need to use heavier weights.
I found that after seven years on Lupron , I could not stand up if on the floor. I had to lean into a chair heavily or on to a bed before I could get up. I’ve been using the leg press at the gym and I found that in the last few days that I can now easily get up from sitting in a chair. At first, I was only able to use 80 pounds in the leg press but I’ve been able to move up to 130, And now I can easily get up from a chair without holding onto anything. Before moving up to the higher weight, I could not do that. I probably don’t need to go any heavier, Getting my legs stronger has really helped. I can also now stand, Without help, After being on the floor.
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I have had the same experience. My oncologist prescribed effexor to help control hot flashes, and it did help cut my hot flashes by at least half. One side effect of Effexor is diarrhea, and that was the reason I eventually discontinued effexor.
My oncologist prescribed 3 month Depo-provera shots for my hot flashes. They really did make a major difference in my hot flashes, I took it for about five years. I stopped for about 2 years but I got one about six weeks ago, because my hot flashes started bothering me again. It has greatly reduced the intensity and frequency of the hot flashes.
I have an embrlabs.com wave product (wave 2). I’ve used it for Over four years now. It’s like a refrigerator that looks like a watch and sits on the inside of your wrist. You could set up one of the buttons for their night mode . Hit the button twice and It Produces cold waves at measured times during the night and prevents hot flashes and night sweats. They used to bug me, before I got this device . When you start to feel a hot flash coming on, you hit another one of the buttons twice and it sends cold chills through your arms and it reduces the intensity, shortens the life and can stop the hot flashes if hit quickly enough. They have a 60 day money back guarantee.
https://embrlabs.com/
I used a fan at night which helped me as I take elegard shots.
I second the embrlabs cooling “watch.” I purchased one a few weeks ago and do notice a difference both at night using the sleep mode and during the day to stop hot flashes the moment I feel them beginning. It does need to be charged a couple of hours every day. I was skeptical but they had a $100 off sale so I bought one, happy I did!
Configuring the wave 2 Can be difficult. I’ve come up with Instructions for how to get it set to ideal settings. I beta tested the wave one And work with Embrlabs closely to fix any bugs I find in their software. Actually found a couple of them recently.
Their medical officer even had me on her podcast (called HER) To discuss the fact that men get hot flashes too.
Setting up Wave2 wave 2 embrlabs
To set the device for the best configuration
Click the bottom left Feel button, scroll down to hot flashes and click it. Scroll down the hot flash cooler five click it, click on “hot flash cooler five” and hit start session. Click the Now round button where you hit start and it will stop the session. Now go back to the main feel screen. Hot flash cooler 5 Should be first in the list, hit the three dots in the right corner, Click on edit and make the temperature level maximum a five. Hit. Save Session. Want to repeat this for all night cool. Click the bottom left Feel button, scroll down to hot flashes and click it Pick all night cool, set The number of hours you want And start it. Then stop it and go back to the main feel screen all night cool Should be the first thing listed. Click the three dots select edit put the cooling on maximum all over to five and hit save session.
Now You have to set the buttons for what you want. To do that you go to settings/session presets. Click on “dotted button” and pick the hot flash five minute. It will probably be second in the list. Select it and hit OK.
Click blank button And select all night cool. Hit ok. DONE!
You now are configured hit the button with the raised dot two times and it will give you five minutes of cooling. Try hitting it the moment you start to feel the hot flash. It will come on a little bit and then will not get so intense.. When you’re ready to go to bed, double click the blank button and it will send cold waves. Occasionally you won’t even notice it at night, but it should stop flashes.
You can always reduce the cooling by following the above instructions.