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Low sodium blood level
Has any out there with ILD experienced low sodium levels in blood work? That’s what I’m dealing with currently. I went to my local hospital ER on 8/19/24. My sodium level showed 122. I believe normal is minimal of 136. I was admitted for 24 hours and given salt tablets every 4 hours, total of 3-4. and at discharge my level was 132. I might add also with fluid restriction so I don’t urinate as much as I was on a diuretic which I stopped. 13 days later blood work showed sodium back down to 125. My PCP thinks this is due to my ILD (NSIP with fibrosis & Bronchiectasis) back on fluid restriction of 1 liter of fluid per day, add salt to daily diet, referral to nephrologist for consultation. This makes it harder for airway clearance with the fluid restriction. Any advice out there!!!
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Hi Barbara,
I always loved salt so use on my food. I do try to limit fluid intake to 1000cc per day and I seem to be stable at 131-132 sodium so see my nephrologist in 6 months.
I was first dx with dilutional hyponatremia about 5 years ago and told to limit water intake. Now they tell me it is SIADH.
Good luck!
Hi, I found this thread cuz I had a mildly low blood sodium, the retest was in low-normal range. However, a spot ("random") urine test looks pretty high. It hadn't occurred to me that all this might be BE+MAC related!
My question is have any of you had low blood sodium levels with high urine sodium levels? And does anyone have an explanation of why BE/MAC affects blood (or urine) levels?
In the waiting stage trying to get more feedback from the (new) endocrinologist who did the tests so hopefully I get more info after the holiday. Thanks in advance!
I just got out of the hospital for 3 days for low sodium in blood. My Pulmonologist sent a sputum sample to Mayo in Rochester after my 1st time with low sodium in August ( November low sodium was my second incident) and it came back negative for MAC. I have BE and Pulmonary Fibrosis. I was drinking a lot of water to help keep the mucus thinned, and the hospital had a nephrologist (Kidney Doctor) see me who determined that because of my lung diseases it triggered the release of a hormone in my body to have my kidney retain as much water as possible to help the injured organ (Lungs) I think he called it SGIH hormone or something like that. I was put on fluids restriction of 60Oz max per day, salt tablets twice per day and furosemide 20 mg once per day. When I went into the hospital my sodium was 122. (Minimum normal is 136) after 3 days I was up to 133, and discharged on the 13th. Keeping the same treatment at home my blood test on the 25th sodium was at 137. So I believe the Kidney Dr. was right on with his diagnosis. Good luck with your situation.
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3 ReactionsI might add that it’s all called an electrolyte imbalance. By the Kidneys retaining water it dilutes the sodium, potassium, and other electrolytes in our bloodstream. Hence the furosemide to excrete excess water. Hope this helps.
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1 ReactionWow I'm sorry you have been going through this. There is always a new surprise with BE/MAC!! Very helpful to hear what you have learned through these episodes. Please be well.
Yes thank you, and the other writer is right it is SIADH hormone syndrome.
Do you mean SIADH? 60 oz of water is still alot of water! Were you drinking more than that?
Yes it is SIADH. And yes I was drinking at least 60 oz of JUST WATER. That of course was to keep the mucus thin to be able to cough up easier. I was never told by anyone you can drink to much liquid!!! All I was told was stay hydrated. And of course 60 oz. Means ALL LIQUIDS, soups, coffee, juice, etc.
How much daily total water do you need? For healthy individuals, the average daily water for men is about 15.5 cups and for women about 11.5 cups. That might mean you need only four to six cups of plain water, depending on other fluid sources such as coffee, tea, juice, fruits, and vegetables.
The above is directly from Cleveland Clinic web site.
Another possible consideration for how much water one needs could also involve and may need to possibly be considered is frequent urination that can occur due to a variety of reasons, including drinking excessive fluids, consuming diuretics like caffeine, urinary tract infections (UTIs), an enlarged prostate (in men), pregnancy, diabetes, bladder stones, nerve damage, anxiety, or a condition called overactive bladder syndrome, how often you find yourself with a bladder that releases all day long and several times at night.
Hope all had a comfortable and lovely Thanksgiving day.
Barbara