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Has anyone been diagnosed with POEMS syndrome?

Blood Cancers & Disorders | Last Active: Dec 1, 2024 | Replies (17)
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@mak21

Hi,I was diagnosed with Poems Syndrome in May of this year,had severe neurological symptoms with bilateral foot drop and was able to ambulate with a walker only,has autologous stem cell transplant upfront June 1st,now able to ambulate without a cane,this procedure is amazing,hope this helps,keep in touch and good luck.
M Khan

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Replies to "Hi,I was diagnosed with Poems Syndrome in May of this year,had severe neurological symptoms with bilateral..."
Lori, Volunteer Mentor | @loribmt | Nov 30, 2024

Welcome to Connect, @mak21. Thank you for sharing your experience with POEMS and the positive improvements you’re seeing after the stem cell transplant using your own cells. I know that’s not an easy process but it’s really encouraging for others who have POEMS to see that there may be an option for reversing the disease.

Recovery time can take several months after an ASCT. How long post-transplant did it take until you realized some of your POEMS symptoms were disappearing?

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