Connect
Kappa light chain is elevated: Anyone dealing with this?
Just found out my kappa light chain is elevated....I am worried ....anyone else dealing with this?
Like
Helpful
HugInterested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Just found out my kappa light chain is elevated....I am worried ....anyone else dealing with this?
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
ConnectConnect with thousands of patients and caregivers for support and answers.
Hi,
I have high Kappa 2.62 and high kappa/lambda ratio 1.94. My last blood work was 2 weeks ago, and now says I have IgM lambda protein present in serum, but does not say any levels or numbers by it. I went to Mayo in 2022 for cardiomyopathy. They did tests for cardiomyopathy and blood work that caught the high FLC. My Mayo Cardiologist did not think I have MM or amylodosis. I hope they are right. This is scary stuff. So far in my home town they are watching it, and I have blood draws every 6 months.
I hope you continue to get answers you need. It helps to know there are others out there with same findings. Best regards.
-
Like -
Helpful -
Hug
1 ReactionThanks. Take care.
-
Like -
Helpful -
Hug
1 ReactionI’m no doctor but your numbers are similar to mine and I was diagnosed with MGUS. I have bloodwork done again in 3 weeks and am having a lot of anxiety
-
Like -
Helpful -
Hug
2 ReactionsYes, my hematologist said I am at the very beginning of MM. He said they will watch it with labs. They offered a bone marrow biopsy, but I think I will wait until I see him again in May.
I try to stay focused on my family and have peace with God. I am very thankful that I can be up and about. I can do daily activities. Yes I get tired a lot, and feel "off" but still thankful for being able to function.
Does your MGUS affect you physically? (only if you want to answer)
Keep your chin up. We have much to be thankful for.
🙂
Hi,
My numbers are higher than yours and they’re checking me every year. My Kappa is 3.39 & Ratio is now 2.19 — so both High with Negative ANA (Auto-immune) so something is going on. My LDH is normal, but my ALP is at the highest end of normal which usually means something is happening in the Liver or the Bones. I’ve asked for an ISOENZYME test to determine where the high ALP is coming from. All these tests were done 7/24, so new tests to recheck are coming up in 7/25. I was having a bunch of weird symptoms that have now gone away. In terms of heart issues, I had AFib, which is an inflammatory condition with cardiac surgery to stop it 4/24. I no longer go into AFib so far. I’m wondering if heart issues can cause FLCs to spike without it being MGUS/MM/AML. Both parents died of Ca. As such, I have switched to an ultra low inflammatory diet, hoping to stop whatever is developing in its tracks.