Assisted-living, memory care: How did you find a good facility?

Posted by SusanEllen66 @SusanEllen66, Nov 13, 2024

I am looking for an Assisted-living, and Memory Care facility for myself.

I have early-mid Alzheimer’s dementia diagnosed by MRI, MRA, PET, EEG, and psycho Neuro test.
More than 3 years ago, I was diagnosed with Mild Cognitive Impairment. I’m telling you all this because people frustrate me when they say things like, ‘you sound and look normal’…

Anyway, to those of you who have found a good place for your loved one, how did you start looking for a place. How did you decide where they would do well.

Cost is a huge factor! I need a Medicaid accepted place after my funds run out. It seems those are the least appealing…

Any help is appreciated.
Thanks

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@roch

@SusanEllen66
I applaud you for planning ahead. I found a good government resource about long term care facilities. Toward end of article are list of resources that should help find out what is available in your area. There is also a link with tips on how to choose a facility.

National Institute on Aging:
https://www.nia.nih.gov/health/assisted-living-and-nursing-homes/long-term-care-facilities-assisted-living-nursing-homes
You might also search your state's Human Services website.

Do you have a timeframe when plan on moving?

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I have done a lot of investigating. Every state has its own program. You have to own almost nothing ($2000) to qualify for Medicaid.

I will probably move into assisted living within 2 years.
Right now I have the resources to self pay for 2 years.

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@SusanEllen66

I have done a lot of investigating. Every state has its own program. You have to own almost nothing ($2000) to qualify for Medicaid.

I will probably move into assisted living within 2 years.
Right now I have the resources to self pay for 2 years.

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The asset limit is low, however most homes are not counted. I’m surprised that most states have AL assistance. But, that’s good to know.

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My advice to people looking into any kind of care facility to please do your back ground checks, like state inspection, have they ever been fined and if so for what. What is the staffing like does the facility have a big turn over in staff.
I say this because it may look nice smell good, but you need to look at other things to. If you get a chance to talk to other people and family members please do that.
Remember you are paying to living there. Hope this helps

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ask your primary care dr. for recommendations then go check them out. I hope to age in place but it is getting difficult because of declining mobility.

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@celia16

The asset limit is low, however most homes are not counted. I’m surprised that most states have AL assistance. But, that’s good to know.

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@celia16
If single like I am, the house is included.
The only time it’s not is if you are married. The spouse needs a place to live.

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@colleenyoung

@SusanEllen66, I made your post into a new discussion to help gather tips from people who have looked for assisted living and memory care for themselves or for a loved one. You're so wise to start looking now.

@trishaanderson @sueinmn @bayviewgal @maryvc, can you start off the discussion? How did you get started to find assisted living care? What were your non-negotiables? In looking at facilities, what have you learned to look for?

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@colleenyoung
There are agencies who will visit and access the conditions of the place. They can also negotiate prices.
You do not pay for their service.
I found one whom I trust, and she will work with/for me soon.

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@SusanEllen66

@celia16
If single like I am, the house is included.
The only time it’s not is if you are married. The spouse needs a place to live.

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It varies by state, but in my state for Medicaid long term care asset evaluation certain exempt items are equity in residence up to $585,000 (single ownership ok), one car, household property, and certain prepaid burial plans and plots. Although, recovery at death might attach to the residence, unless a spouse lives there. Of course working with an estate planner/Medicaid experienced elder attorney is helpful.

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@celia16

It varies by state, but in my state for Medicaid long term care asset evaluation certain exempt items are equity in residence up to $585,000 (single ownership ok), one car, household property, and certain prepaid burial plans and plots. Although, recovery at death might attach to the residence, unless a spouse lives there. Of course working with an estate planner/Medicaid experienced elder attorney is helpful.

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Blessed are those rare few who planned early before they had any health problems and who have excellent long term care coverage. Be careful to avoid potential fees scams of nurse evaluation placing you in a much higher “level of care” than you belong and trying to change all your physicians to theirs. Visit multiple times, read state health inspection reports (even for non-medicaid facilities). Ask about guest policies and any restrictions on going out. Look at the residents and observe whether they look happy and well cared for. Ask about the nursing staff—is there a licensed RN or are you expected to sign agreeing non-medical co personnel can dispense drugs to you. Drug distribution errors happen and you don’t want to be a victim of one. At least, in this state only licensed medical personnel can dispense drugs. Exceptions are: waivers signed by incoming ALF patients. Don’t sign Anything without a lawyer reviewing it and discussing it with you. Numerous residence agreements i’ve seen provide the facility the right to appoint themself as your guardian if they decide you need it (no criteria presented). Referrals of people who have already lived there are good. it’s also helpful to ask to have a meal with a couple residents and ask them questions. i’m still looking.

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@elisabeth007

Blessed are those rare few who planned early before they had any health problems and who have excellent long term care coverage. Be careful to avoid potential fees scams of nurse evaluation placing you in a much higher “level of care” than you belong and trying to change all your physicians to theirs. Visit multiple times, read state health inspection reports (even for non-medicaid facilities). Ask about guest policies and any restrictions on going out. Look at the residents and observe whether they look happy and well cared for. Ask about the nursing staff—is there a licensed RN or are you expected to sign agreeing non-medical co personnel can dispense drugs to you. Drug distribution errors happen and you don’t want to be a victim of one. At least, in this state only licensed medical personnel can dispense drugs. Exceptions are: waivers signed by incoming ALF patients. Don’t sign Anything without a lawyer reviewing it and discussing it with you. Numerous residence agreements i’ve seen provide the facility the right to appoint themself as your guardian if they decide you need it (no criteria presented). Referrals of people who have already lived there are good. it’s also helpful to ask to have a meal with a couple residents and ask them questions. i’m still looking.

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Elizabeth, you make some excellent observations, and if you don't mind, I would like to tie your remarks, well after my own, to what I said about this many posts ago: know what you want, and where it should take place. You have said very well that you must be clear about what you need from the prospective facility, and with those critical criteria written in a list, take THOSE to your lawyer and ask him/her if it looks like a safe bet at that place. While you may feel that it looks good, all criteria met, the lawyer may cough and ask, 'Okay, but did you notice that.......?'

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@SusanEllen66

@colleenyoung
There are agencies who will visit and access the conditions of the place. They can also negotiate prices.
You do not pay for their service.
I found one whom I trust, and she will work with/for me soon.

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who are those agencies? in which state?

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