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Showering with Sjogren’s

Posted by mamadaniel69 @mamadaniel69, Sep 10, 2023

I wonder if anyone had input on how often to shower with Sjogren’s. I know that dry skin often leads some to shower less, and I have found I itch more when I shower every day. So, how does one deal with that?

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celia16 | @celia16 | Jan 2 11:20am

This is very interesting. So, from what I’m reading, I would be one of the only Sjogrens patients whose only symptom is dry eye.

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Laurie J Van Roekel | @laurievr | Feb 13 11:44am
In reply to @mtnyankee "I don't produce tears either especially when crying. I feel it makes crying harder. It makes..." + (show)
@mtnyankee

I don't produce tears either especially when crying. I feel it makes crying harder. It makes me sad that people think I am unemotional. I have been like this since childhood.

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I cannot cry, either and I have very dry eyes. My mouth gets dry, too, but have not been diagnosed with Sjogren’s Syndrome. My neurologist believes I have Myasthenia Gravis. I am in the process of getting an appointment with the Maya Clinic.

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sandra1983 | @sandra1983 | Feb 14 4:04am

Lots and lots of moisturizer!❤️

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sandra1983 | @sandra1983 | Feb 14 9:05am

I use a natural soap from India and shower twice a week. After I don't towel dry, I directly apply baby lotion to my whole body. Less itching and skin does not look or feel dry. Hope this helps. But I do think the environment, and what you do for work would influence this. I am retired and home.

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mikemiller01 | @mikemiller01 | 20 hours ago
In reply to @psilvalc "I shower every day, sometimes twice per day on hot days. I only use warm water...." + (show)
@psilvalc

I shower every day, sometimes twice per day on hot days. I only use warm water. I found hot or cold water makes me itch a lot. I heard a comment from a Dermatologist who said to pad-dry your whole body gently after a shower and apply a heavy cream (CeraVe) to seal in as much moisture as possible. I have been doing it almost for a year, and trust me, it is a game-changer. My go-to soap is Dove, the classic fragrance. My doctor recommended lathering only in the smelly areas of the body and avoiding any type of scrubbing. The shampoo that helps me the most is the Nizoral anti-dandruff.

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Before Nizoral did you notice your scalp being super dry and tiny white flakes (dead dry skin) everywhere ? I was diagnose but haven't been able to find a decent shampoo that doesn't dry me out even more

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