Help - I am burned out and dealing with someone who is stubborn

Posted by kartwk @kartwk, Oct 8 11:05am

My husband has a history of COPD and asthma. He has used every inhaler that is available and same with the drugs, which is claims to have problems with all of them

For the last two months it has been awful. We seem to be at the ER and doctor every few days. Last time at doc was Friday. He was given an antibiotic. This morning, I ask him how his lungs are doing and he tells me fine. I figured this because for the last two months or so all he does is go around honking, deliberately, up stuff and looking at what color it is. Trust me, I have the kleenex all over that I keep picking up. He is OBSESSED with the color - is it green, is it gray, is it clear. This even though the doc on Friday told him that color doesn't matter.

Now he is back on the phone for another doc. apt. His lungs, which were fine just an hour ago are now "all clogged up" and he is honking (generally becauses he keeps trying to) and he feels awful.

I must say, this shocked me as he just told me he was getting better.

Anyway, I can not clean around the house and he is b*tching that because of the house his lungs are bad. BULL. I do not use any strong chemicals. I generally use vinegar and water to clean floors, I dust weekly. NOW, though even vinegar bothers his lungs, so he claims.

The final straw for me came this weekend after it had rained several days. He walked outside and, oh his lungs were bothered. Why you ask, Because of the smell the air gets after it rains! This is not about pollen, etc, but just the earthy smell that comes after a good rain. At this point I am having my doubts.

I cannot tell you how many differnt doctors we have been to. Two weeks ago he told me to be ready to take him to the hospital, that didn't happen. Now he is sitting there telling me he is gonna die!

I just don't know what to do.

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@keepmoving2

@kartwk I like your spunk! I have read back over your posts about different topics over the last few years & certainly you have had a lot to deal with. But you just seem to “put your big girl panties on” as they say. You keep moving forward.
Straight talk - your journey will not get easier. Especially physically. So let’s work smarter. Just reaching out to this blog site for help & venting is a huge step. 1st - have a discussion with your husband about your wills, both of your health situations, and what you both want. And remind him you love him. Pick a good time. Do not be discouraged if he can’t or won’t talk about any or all. This will give you an idea of his cognitive situation as often illnesses and lower oxygen and age can affect some. Then you need to make notes about your thoughts. From this combined “wants/needs” - you have a plan. Then you take the baby steps to implement it. For example - make your wills known to family members to get them off your backs. Too many people are not upfront & it makes it difficult for loved ones. If you and/or your husband value your physical independence, then get some help. Hire a kid or better yet a handyman or a service to help with yard work, cleaning the house or even shaking rugs. These little help tools make it easier for you both to stay healthy and prevent injuries - which reduce independence. Lastly - there is joy, bright moments, little things that can yield a smile that need to be found or made. Old friends, church members, Seniors Helping Seniors, local agencies, book clubs, a weekly center, volunteer, animal shelter, library, knitting, baking - the world is full of so much. There are 3 of you in this relationship that need to be taken care of - you, your husband and you as a couple. Make a list of the baby steps to be taken - not the giant leaps - and start crossing them off. Some will not be easy. A person once likened it to running a marathon - just do each mile and they will add up. I have done several - both literally & figuratively - never easy nor pretty. But here I am! Good luck & keep moving.

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Thanks so much for the support and advice. This board is fantastic as just coming here and venting for a moment helps my state of mind.

Seems every day has a new challenge. Today he wants to start from scratch. Redo tests, chest x-rays (just had one in mid-Aug.) etc. He's off and running and still the same. I told him, when we last talked about this matter, that they may not be able to do much more for him and he needs to have them figure out how to just best go forward as things are. That WE are both getting old and that neither one of us wants to hear or face it, that is just how life goes.

One thing we are fortunate in is that we have a wonderful Christian neighbor who does a lot for us without even asking. This morning, he was out checking our gutters and blew off the deck! He refuses money but I give him a check made out to his Church as I told him he was the Lord's blessing.

Far different from the step-daughter that will only do things if there is something in it for her. Interesting that we haven't seen hide nor hair of her since June and she only lives 8 miles away.

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@billiekip

Your words" sometimes as a caretaker we don't get enough praise" hit a note with me this morning. I have a friend on the opposite coast who is caring for his wife with ALZ , so we are sharing our journey with our spouses. He sent me this email:
"Thank you. I bet you haven't heard that for a while."
Just a few words of encouragement sent out or received can change the trajectory of the day. I call my emails to friends in difficult situations my "atta boy/girl" notes.

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You are so right. It is tough to see your loved one suffering etc. Sometimes, when H really starts honking and checking his mucus (which is pretty much ALL the tie, grr), I just get up and go in the other room and cry.

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@celia16

I’d be concerned with him using equipment like that. Is it a riding mower? Difficult behavior, poor judgment, obsessions, etc. can be indicative of cognitive problems. Have you talked to your doctor about how you are doing? Take care of yourself. If it’s cognitive decline, it usually gets worse, not better. Seroquel helps my dad a little.

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As I said in an earlier post, I have a great neighbor. Earlier he was out cleaning our gutters. Now he is cutting the grass. Thank God!! That will keep H. from going out. H was going to go out and do that today, now he doesn't have to.

Our neighbor won't take money, so what I do is periodically give him a substantial check made out to his church. He is okay with that and that shows he does what he does for the right reason.

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@kartwk

FWIW, about 6 months ago we were in the doc for the same stuff. His lungs. He asked the doc for another inhaler. Doc told him he had them all and there were no new ones, and that he claimed to have problems with and from all of them. He was upset and disappointed.

Yes, he has COPD and lung problems but I believe he is just always looking for something to be wrong with his lungs. He is always force upchucking something out of his lungs into kleenex so he can "evaluate" it. Almost constantly!

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Find him a hobby, cards, puzzles something to get him off his lung problems. My wife and I play aceie/ducie may not be spelled right. We play everyday one or more games. She loves to beat and it takes her alittle out of her bitching mood some. I said some..... My wife wants me there by her side most of the time so I fill our together time for with games or puzzles to try to change her attitude if it's bad. If she is doing good it just keeps her looking to foward to playing more games. My wife suffers from the result of a bullet to her brain. Left her left side paralyzed and in a wheelchair. Her mind is 98% there and stubborn too. Always has a problem but refuse to see a doctor. She just wants to complaints me.... Push my buttons, right. Try not to let them see they got you. I just tell her I'll be back when she settles down. Good Luck, I been a caregiver since December 25, 2018

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