Traveling to NJH

Posted by busybeans @busybeans, Oct 27, 2022

I've just read that Omicron subvariants are resistant to key antibody treatments for those of us who are immunocompromised. Thinking that I'd had every booster known to man and that I was relatively safe, I made travel arrangements to fly to Denver to see my doctor at NJH instead of renting an RV as I have every six months since the pandemic began. Is anyone else traveling by air right now, or have I completely lost my mind? Your thoughts? I can always cancel...I have two weeks.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

hicopd | @hicopd | 4 days ago

Since covid began, have masked most of the time when we are indoors except while eating/drinking. I always mask while traveling—in airport, airplane and transit. It seems prudent.

tconz | @tconz | 4 days ago

In reply to @lilianna "I hope it’s not inappropriate to ask but what was courtyards cherry creek discount per night?..." + (show)

I was just there and it was $179 per night but I am also a Bonvoy member.

lilianna | @lilianna | 4 days ago

In reply to @hicopd "Can’t remember but think it was maybe $150/nite or so but nearly a decade ago." + (show)

Thank you

helen1000 | @helen1000 | 4 days ago

Will anyone go to NJH in mid-December? I have an appointment on Dec 10-21. However I have done many tests locally like sweat test, blood work, vision/hearing, celiac disease, PFT, Cystic Fibrosis genetic test, Auto immune disease test, etc. Sounds that it is possible that NJH does not need to repeat all the tests I have done so I can leave earlier?

I don't have any auto immune issues or other underlying lung conditions except mild bronchiectasis in MAC area and gluten intolerance. My only concern are my two small cavities. Some doctors say they won't close up as there is no blood circulation in cavities, while some patients say their cavities close up. I also see some articles say cavities can close up.

I have been on antibiotics for four months and they helped shrink the cavities so far. If they can close up, I probably won't need a surgery. But I also heard that antibiotics won't cure MAC - only with surgery to remove bronchiectasis. Everything is pending with uncertain outcome. With all of these questions in mind, I really feel I need a second opinion.

Rick | @rstel7272 | 3 days ago

In reply to @helen1000 "Will anyone go to NJH in mid-December? I have an appointment on Dec 10-21. However I..." + (show)

NJH generally repeats all tests and add in a few more. Did njh assign a pulminologist for your visit?

pegs | @pegs | 3 days ago

In reply to @roz14 "I found NJH when I was frustrated by the doctors here in Tucson and knew that..." + (show)

Hi i also live in Tucson and had MAC 10 yrs ago. Then last year Pseudo surfaced.
Would love to connect.
Glad you are feeling better.
I feel so isolated here in Tus.
But my doctors got me through so far.

helen1000 | @helen1000 | 3 days ago

In reply to @rstel7272 "NJH generally repeats all tests and add in a few more. Did njh assign a pulminologist..." + (show)

Thanks Rick! I did not know that they have to repeat all tests. That is a waste of money for insurance company! My pulmonologist recommends Dr. Darly and Dr. Shannon. I choose Dr Shannon as she is a female doctor with good reputation.

blm1007blm1007 | @blm1007blm1007 | 2 days ago

In reply to @helen1000 "Thanks Rick! I did not know that they have to repeat all tests. That is a..." + (show)

You will probably see the Doctor first before all testing is begun.
I take it your previous test results have been sent to NJH? If so....maybe on that first Doctor visit and discusssion of what they are going to schedule for you at NJH....if you feel comfortable doing so..... you might ask what ones have to be repeated...etc. etc. and why if you want to know. I had not had the tests they did for me at NJH before going to NJH other than the local CScan with my PCP that showed BE.
It is again a great deal of information to take in while you are there. I would be interested in knowing if you see your lead doctor at the end of each day of testing for a review of the tests. I only got to see my lead doctor the first day and last day for discussions. It would help to see the doctor each day, if at all possible.
Barbara

helen1000 | @helen1000 | 2 days ago

In reply to @blm1007blm1007 "You will probably see the Doctor first before all testing is begun. I take it your..." + (show)

Yes Barabara, that is a very good reminder. I should ask her whether I need to repeat those tests. I don't want to repeat everything I did. I have faxed them all the reports and will bring a copy for all of them too. In that way, it will be efficient. I will keep your question in mind too. Thsnk you.

judilynn2 | @judilynn2 | 1 day ago

In reply to @pegs "Hi i also live in Tucson and had MAC 10 yrs ago. Then last year Pseudo..." + (show)

Hi Pegs, I too live in Tucson - well, Catalina a bit north of Tucson. I was just diagnosed last week with MAC. Had pseudomonus last year. I am trying to decide what to do. My pulmonologist told me of the 'cocktail' of 3 antibiotics but I'm hesitant to start that. I''m 85 years old, have lead an active life, hiking, etc. Now scoliosis/stenosis limits my mobility. I've had asthma since my teens. Cheering you on as you journey through your life. Just being connected to this support group has helped me not feel so isolated. Thanks for sharing.