MRI Brain Scan-40 year old Female

I have PCS from a bad head injury when I was 65. I had had two prior concussions when i was 5 and 12. I lost consciousness when I was 12. But the symptoms you describe are similar to mine. They have done MRI’s and told me that nothing is wrong, buy my symptoms continue. Through the concussion legacy I learned than many brain injuries that or brain problems can not be diagnosed from MRI’s. There is a way though. When you die they can dissect your brain and find the problem them. Not helpful of course, but I feel your pain. Many people with brain injuries are in our same boat.

It has taken 50 years to get my severe concussion with coma recognized as a significant problem. I sympathize with you completely. I think it is hard to diagnose plus different doctors seem to look for or key on different things. I believe that doctors don't want to say "you have a problem and I don't know how to fix it". They would rather say "you don't have a problem". I have taken a very active role in all of my treatments and have changed doctors more that once. I am sure this is not reccomended but I am constantly on the internet looking at articles and studies reguarding what I am going through. Not all doctors are the same. Some are fantastic and some are way out of their limitations. I don't know how we as patients are supposed to pas through this mine fiels but it is not up to us to accept service that is not working just because the people treating us are not doing a great job.

Hi, I’m so sorry you’re experiencing these debilitating symptoms. I have some similar symptoms, and am also searching for a proper diagnosis. Try researching Idiopathic Intracranial Hypertension, Spontaneous Intracranial Hypotension, Cerebral Fluid Leaks, both cranial and spinal. There are other more detailed scans which can be done to determine if one or more of these conditions is present. There are not many experts in CSF leaks, and these conditions are often missed or misdiagnosed. Mayo has a CSF leak program, and other major medical centers. You can also watch YouTube videos to learn more. Hope this helps!

Have you been tested for MOGAD Autoimmune Disease? We share some symptoms but mine has loss of feeling/numbness in my legs and feet mostly but MOGAD symptoms do often have headaches and vision problems.

Yeah, get a referral to a neurologist. MS, NMO (Neuro-Myelitis Optica), and MOGAD should be ruled out. Especially MS, which is relatively common.

I have had almost identical symptoms. MRI showed more than 10 abnormalities in the white matter.
3rd doctor I saw is sending me for cognitive testing. What does that have to do with shaking and tipping over??

I definitely cannot post a long message because of either the 80 mg. of steroids I take daily. Friday I get my first infusion of rituxin, had to fight with my insurance for 2 months to get that. But there are specialized blood tests for my auto-immune disease and it's relatively new. Most neurologists and doctors haven't even heard of it. It is MOGAD. Go to the megaproject.com and check it out. It might be .org? Google it! My story sounds so much like your other message. I broke my left ankle on 2/28/23. Had surgery and in the hospital I was diagnosed with Non-MS Demyelinating disease. After 6 months and specialized blood assays, I was finally diagnosed with MOGAD. There is also NMOGAD. that affects your eyes. Good luck and God Bless!🙏Wow! I wrote all that?😂

Not mega! Mogproject!

Have you had any contrast MRI for anything prior to your symptoms?

elishara23 hi I would be asking for another doctors opinion x