Specialist in New England

Posted by mame @mame, Aug 16 6:57am

Looking for a recommendation for specialist in my area. I live in Maine. I noticed that Mass General in Boston has both a bronchiectasis program & MAC. If I have both which should I choose?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

ljostroga1973 | @ljostroga1973 | Aug 18 8:57am

In reply to @camilleups "We are in Litchfield Park. I go on Oct 28th." + (show)

I’m in Goodyear and was wondering who you see for pulmonologist and infectious disease drs. I’m ready to fire mine

smallfish1 | @smallfish1 | Aug 27 7:24am

I also live in Maine. I have bronchiectasis and being treated at Southern Maine Medical Pulmonary Specialists. I have requested a second opinion on treatment and I have been referred to Mass General Brigham. Waiting for appointment.

mame | @mame | Aug 27 9:09am

In reply to @smallfish1 "I also live in Maine. I have bronchiectasis and being treated at Southern Maine Medical Pulmonary..." + (show)

Well hello fellow Mainer! I see Dr. Morin there. After my recent appointment, I started airway clearance with nebulizer, levabuteral and 3% saline. He also talked about an ordering a vest if I have no progress, then I will go to Boston.

smallfish1 | @smallfish1 | Aug 27 10:00am

In reply to @mame "Well hello fellow Mainer! I see Dr. Morin there. After my recent appointment, I started airway..." + (show)

Dr. Morin is my doc as well. He ordered a nebulizer for me last Friday. Waiting to receive it. Currently taking round of doxycycline. Vest is on order.

wsbme74 | @wsbme74 | Aug 28 7:52am

Mainer, too. I live outside of Portland and see Dr. D'Amico at Chest Medicine Associates, who also works in the CF clinic. Availability for appointments and calls is an issue and most on-call doctors and nurses there really don't understand Bronchiectasis. When I was first diagnosed last year, but a different pulmonologist there, they did not even mention airway clearance. I found out about that on my own (and then switched doctors).

I did see someone at Mass General but with that particular doctor, it wasn't worth the trip. I use NordX lab for samples and I wish they were better; I have had more sputum samples rejected than I think would happen at a bigger lab.

mame | @mame | Aug 28 9:43am

Did you go to the Bronchieactasis clinic at Mass General? Are you allowed to say which doctor you saw?

mame | @mame | Nov 24 1:06pm

In reply to @smallfish1 "Dr. Morin is my doc as well. He ordered a nebulizer for me last Friday. Waiting..." + (show)

Hi again. Your post from Aug 27 said you got a referral from Dr Morin to Mass General. Could you give me an update?
Did you see a pulmonologist or an infectious disease doctor? Any info would be helpful I am going to see my doctor again on Tuesday and wondered if there’s anything I should be aware of. Thank you 😊

smallfish1 | @smallfish1 | Nov 25 8:37am

Good morning. My appointment at Mass General Brigham Womens is not until December 23rd. I am seeing Dr. Manuela Cernadas who is board certified in pulmonary disease, internal medicine and critical care. I just don't know what to expect after reading what people experience at NJH. I feel like my appointment is a consultation and where goes from there I don't know. Where is your appointment on Tuesday? In Maine?

mame | @mame | Nov 25 10:50am

In reply to @smallfish1 "Good morning. My appointment at Mass General Brigham Womens is not until December 23rd. I am..." + (show)

Yes just a follow-up with Dr. Morin. I heard that he will no longer be seeing patients in clinic starting in January, he will be hospital based only. I have no idea who will take his place or what to expect.
Looks like it took 4 months for you to get an appointment! I should have insisted on a referral at my last appointment but we were going to be starting the nebulizing so he thought it best to wait so I had more helpful information when I do get a referral. One day at a time, keep advocating for what we need. Has the nebulizing and vest helped you?