Second Opinions: How do I get one at Mayo Clinic out-of state?

Posted by cbower75 @cbower75, Mar 27 12:15am

I want to know how hard it is to get a second opinion with Mayo and if it’s possible to do via telehealth since I am out of state and several hours away . I have a hematologist but he is not addressing abnormal positive results and or many high and low tests. I’m not a doctor but I want answers. I hear Mayo is one of the best.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@gingerw

@vgdmayo Thanks to @loribmt for tagging me in this conversation. OHSU, going to their website, gave me this information for drs there treating the condition your husband has: https://www.ohsu.edu/health/find-a-doctor/search?accepting=&age_group=&distance=&gender=&insurance=&language=&location=&online=&pcp=&shuffle_seed=PS-66089c29a76a25.04961389&sort=&term=waldenstroms%20macroglobulinemia&vector_name=&vector_value=

I am a patient at Willamette Valley Cancer Institute and Research Center, in Eugene. They have several locations. I plugged in your husband's condition and here is the result of the doctors who treat it, and the locations they are at: https://www.oregoncancer.com/physicians?specialty=&special_interest=Lymphoma&location=

I am biased, and admit that. I have been a patient for 5 years, and feel grateful to have Dr. Yasenchak as my oncologist. By the way, he was a Mayo Clinic resident doctor before he moved out here 8 years ago, and still keeps in touch with his colleagues.

If I can be of any further help, please let me know! As a fellow blood cancer patient, we know the frustration of getting a great medical team in our corner.
Ginger

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Thanks Ginger, you are so sweet. I’m glad to hear you have confidence your
doctor. That’s a huge plus.

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I just called Mayo and told them I wanted a 2nd opinion. I have PMF. I got one right away. I had my hematologist send a referral but you don't need one.

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@cbower75, and others. Hoping everyone is 'well'...
Other NCI certified cancer research universities are:
- Northwestern, Chicago
- Mt Sinai, Los Angeles
- MD Anderson, Houston

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@gregda

@cbower75, and others. Hoping everyone is 'well'...
Other NCI certified cancer research universities are:
- Northwestern, Chicago
- Mt Sinai, Los Angeles
- MD Anderson, Houston

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also Memorial Sloan Kettering in NYC
and Dana Farber in Boston

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Just FYI - re MD Anderson. Took my husband there in 2019 after a dx of Pancreatic Stage IV cancer. Was not impressed at all. I have had discussions with other acquaintances and friends who feel the same way. Remember it is a research center......selection of candidates for their research need to meet criteria of the research project so you will be selecting those patients with a relatively reasonable expectation to be cured or at least put into remission

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@carolannt

I just called Mayo and told them I wanted a 2nd opinion. I have PMF. I got one right away. I had my hematologist send a referral but you don't need one.

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Who were you able to see at the Mayo Clinic?

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