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@debra1954

Thank you for your caring words and support. I was planning on surgery within 2 months and currently having tests at Duke Health in NC which is a COE. I am considering Mayo in Minnesota as one of the COE where highest number performed there. They do minimally invasive robotic (through the ribs) heart surgery but need to actually reach out if SM procedure is done. I understand though that a SM is very intensive surgery, unique to everyone’s own heart anatomy.

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Replies to "Thank you for your caring words and support. I was planning on surgery within 2 months..."

I have just had a mini mitral replacement in London with a small shaving of the septum. It was minimally invasive and under the right arm and behind right rub. It’s 12 weeks now and am still recovering and recouperating. It’s no picnic believe me but you will come out the other side emotionally bruised and battered. I have gone into A F but should subside within 6 months. I was being treated for HOCM for around 15 years and apparently mitral was the real problem. Camzyos was not for me sadly and I was pretty much symptom free but 29 years down the line who knows. Some days I just wish I hadn’t done this but approaching week 13 feel it should have been done. Has a rough time in hospital with pneumonia, delirium (with anaesthetic) and Covid but that’s life. Wishing you all well in your journey. The bypass machine you won’t even know about and I am a youngish 74. Hope this helps.

I would love to follow your path, I am in Dallas, and my care team (not a COE) told me they do robotic myomectomy through the ribs, but other sources I find keep indicating that it has not been studied or published enough. I am meeting with that surgeon at the end of January and am gathering questions to ask. After all of my research thus far, he will have to really convince me that it is the way to go because I am leaning against it. Apparently, there are a lot of lifelong consequences if they don't get it right, i.e., thin the septal wall too much could mean a permanent pacemaker, etc. Good Luck!