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DiscussionSecond Opinions: How do I get one at Mayo Clinic out-of state?
Blood Cancers & Disorders | Last Active: Nov 19 10:38am | Replies (35)Comment receiving replies
Replies to "Just FYI - re MD Anderson. Took my husband there in 2019 after a dx of..."
I'm not trying to disagree or judge..I'm an MdAnderson, Houston patient first for Breast Cancer, then Bowel Cancer, and now PV JAK2.. Ive been a patient at MDA for 13 years over the course of cancers. Ive only been asked once to be part of a Research program for PV JAK2, Declined and was never asked again..There's a way to find what research studies are going on in an institution and I checked..I'm getting standard treatment for PVJAK2 and there's no research number for that..There are several MDAnderson locations not just in Texas but throughout the Country...I can only speak to MDAnderson, Houston location. Ive never had a problem, extremely happy with my care over the years with three separate cancers.
Jacqueline Carey....
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Sorry to hear your experience. I'm familiar w/ the Mayo 'system' in which TEAM-work reviews, researches... In Tampa there's the budding Moffitt Cancer, NCI Research and Provider Center.... I had a friend from Scottsdale, AZ Mayo referred to Mottitt. Much still depends, sadly, upon the experience and openness of the Dr/s who review a patient. This is why I'm seeking a TEAM of Reviewers.... Hope you hubby IS better !!