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Unanswered questions: autoimmune therapy for lung cancer
I'm on the end of my Chemo & Radiation treatment for small cell lung cancer. My cancer doctor mentioned a one year autoimmune therapy but refused to answer any questions about it until the time comes. To the point that he yelled at me for asking the questions. I am so confused and frustrated. This entire cancer experience is new to me and even though I requested all my risks, systems, procedures, everything explained to me in the very beginning, I learned quickly, my requests were ignored. I'm seeing the top cancer doctors in my area. But, I'm looking at making a decision on to live or die. Please, any information will be greatly appreciated.
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Contact the Helpline at Go2 Foundation. 1-800-298-2436
They have researchers on staff to answer questions like this.
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1 ReactionHi Frandy,
I'm sorry that you are going through all of this. That must be hard for you! My husband had lung cancer. They gave him an autoimmune therapy drug called Keytruda. He reacted badly to it and almost died. He got Pancreatitis which is a known side effect of Keytruda. It was because of our very good primary doctor and prayers, that he got to the right specialist and after a long battle, my husband was fine. However, he said that he would never have another Keytruda treatment. The doctors didn't like that decision but it was my husband's body and money! (Keytruda cost $25,000 per infusion!) He received two infusions per month. My husband died in July but we had 14 wonderful years together since his cancer diagnosis. I don't think we would have had that time if he had continued on Keytruda.
I would suggest doing as much research on autoimmune therapy drugs as you can before you make a decision.
The Mayo Clinic is one of the best places to do research. Google will also give you a variety of websites to investigate. Don't just take what happened to my husband as the only result. Everyone is different when it comes to medication. Once you have a lot of information, then you can decide what is best for you.
That's not right for the doctor to yell at you! Doesn't he realize that you are the sick patient? You don't yell at sick people! You may want to look for a new doctor. Remember, it's your money and your body. Your doctor works for you. Also take some time to let your body recuperate from the chemotherapy and radiation sessions. And, for yourself. You probably need a break.
Pray about it and God will direct you. You may feel that you are making a life or death decision but it's only God who makes that decision. Just talk to God like he's your best friend and he is. Put everything in his hands and you just relax and enjoy life!
I'll remember you in my prayers.
PML