1. < Lung Cancer

Unanswered questions: immunotherapy for lung cancer

Posted by frandy @frandy, Nov 21, 2024

I'm on the end of my Chemo & Radiation treatment for small cell lung cancer. My cancer doctor mentioned a one year autoimmune therapy but refused to answer any questions about it until the time comes. To the point that he yelled at me for asking the questions. I am so confused and frustrated. This entire cancer experience is new to me and even though I requested all my risks, systems, procedures, everything explained to me in the very beginning, I learned quickly, my requests were ignored. I'm seeing the top cancer doctors in my area. But, I'm looking at making a decision on to live or die. Please, any information will be greatly appreciated.

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Mentor
Lisa, Volunteer Mentor | @lls8000 | Jan 7 5:42pm
In reply to @nanajan26 "I was diagnosed with stage 3a havoc which was not resectable due to lymph node location...." + (show)
@nanajan26

I was diagnosed with stage 3a havoc which was not resectable due to lymph node location. Had 6 chemo & 30 radiation treatments that went very well.No side effects at all. Started me on Tagrisso and after 2 months developed terrible side effects and ended up in hospital with pneumonitis. Dr said good thing ! Came in. See oncologist Thursday and have no idea what's going to be next. Anyone else have this happen?

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Welcome to Mayo Connect @nanajan26, The targeted therapy medications (like Tagrisso) can be amazing when they work, but for some people they come with some scary reactions and side-effects. We'll be interested to hear what your oncologist has to say later this week. Are you feeling better off the drug, and are your lungs are returning to normal?

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nanajan26 | @nanajan26 | Jan 7 6:49pm
In reply to @lls8000 "Welcome to Mayo Connect @nanajan26, The targeted therapy medications (like Tagrisso) can be amazing when they..." + (show)
@lls8000

Welcome to Mayo Connect @nanajan26, The targeted therapy medications (like Tagrisso) can be amazing when they work, but for some people they come with some scary reactions and side-effects. We'll be interested to hear what your oncologist has to say later this week. Are you feeling better off the drug, and are your lungs are returning to normal?

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Yes, I don't have any of the side effects & my pulse ox has been very good. Anxious about the future

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