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Chronic CVST

Stroke & Cerebrovascular Diseases | Last Active: Dec 3 10:12am | Replies (17)

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@jacoblamb

Hi. I read one of your posts back from May. Did you get another opinion regarding your clots? If you haven't, i would seek advice from top doctors in your area. You may need to travel if you're not near a big city. If you're struggling, you should do everything to advocate for yourself.

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Replies to "Hi. I read one of your posts back from May. Did you get another opinion regarding..."

Thank you. I was in Wichita Kansas and did have to advocate for myself a lot. I have since moved home to Colorado and still advocate and they have seen the same thing with the clot. I have applied to disability but was denied and have appealed. Apparently I am too disabled to keep/get a job and not enough for support from the government. It is hard. The strokes have left me with my executive functioning skills and have PTSD, OCD, anxiety, depression and a slew of other diagnoses from this. Thank you for listening. I am trying to stay positive and want to believe that I made it this far for a reason- some weeks are just harder than others.