Should I take the new medication ?

Hello @zeedee1 I would always follow my doctors orders if it is a doctor I feel I can trust. If you don’t feel like you can trust this doctor then I would get a second opinion. We got my husbands second at Mayo, then that doctor coordinates with our local doctor for the best care possible. You said you were diagnosed 6 months ago, what was that diagnosis? Can you please explain more about your diagnosis, did your numbers start climbing when you stopped Imbruvica or are you still on it?

Diagnosis was Waldenstroms after bone marrow biopsy and tons of blood work and scans. Still on imbruvuca but it seemed to level off after good initial response . I completely trust my doctor but don’t know how bad side effects from infusions will be. Thanks in advance.

That was I’m not ign

Monoclonal antibodies typically but not always have a risk of infusion related side effects. Just from the drug going in, but once in and past the first few days of possible effects from it doing it’s job, it should settle down. I have been familiar with a couple of them, one for myeloma (husband), and one for lung cancer (brother). Overwhelmingly they both had fatigue, and both required some level of anti nausea medicine.
Remember to report any side effects to your team, if it feels serious, do it immediately.
When are you due to start the new medicine?

Waiting for authorization from insurance company. Hope it’s soon because I have met my deductibles this year😏