Current treatments and new guidelines for diagnosis of CIDP

Posted by kgitti @kgitti, Apr 5 1:33pm

All, I have found these very useful.

Treatment


New Protocols

New Protocols

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Thanks kgitti I will look those YouTube links

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@kgitti Is this discussion still viable? Do the links still work? If not, let me know so it can be removed. I can see that the links are still working. Do you have scientific back up for each one?

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@becsbuddy

@kgitti Is this discussion still viable? Do the links still work? If not, let me know so it can be removed. I can see that the links are still working. Do you have scientific back up for each one?

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I think they are pretty current based on my research into my own desease. These still work.

Of course if anyone has some more current links please post them! That’s why I started this thread!

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@kgitti thank you for the links! I saved them so I can watch later when my dog takes a nap. But I did see quite a few more on the YouTube page. How are you dealing CIDP?

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Got my third infusion of Ritexamub (Ritexan sp??) for cidp which was most likely caused by the covid Vaccine.
UCLA nueromuscular doctors are great! It is working pretty well so far

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@becsbuddy

@kgitti thank you for the links! I saved them so I can watch later when my dog takes a nap. But I did see quite a few more on the YouTube page. How are you dealing CIDP?

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SCIG treatments weekly, PT, Gabapentin, Ridalin. Anti-depression drug, dogs and good family and friends support.

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I just saw this upcoming webinar from the Foundation for Peripheral Neuropathy that I think might be helpful for members with CIDP.

FPN Webinar: New Horizons in CIDP Therapy: Exploring Current and Future Treatments
Wed, Dec 4, 2024 2:30 PM - 3:30 PM CST

The Foundation for Peripheral Neuropathy is pleased to welcome Vanessa Tiongson, MD from Mount Sinai Medical School of Medicine in New York and patient advocate, Bob L., to talk about CIDP (Chronic Inflammatory Demyelinating Polyneuropathy).

During this one-hour program, we will hear first-hand from a patient who has had CIDP since 2007, and how he is managing living with this condition. As we explore this disease more, Dr. Tiongson will give an introduction about the disease state, including symptoms and diagnostics. She will also discuss CIDP treatment options, including newly approved medications and trials.

Registration: https://register.gotowebinar.com/register/5441578047087636311

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