Current treatments and new guidelines for diagnosis of CIDP

Thanks kgitti I will look those YouTube links

@kgitti Is this discussion still viable? Do the links still work? If not, let me know so it can be removed. I can see that the links are still working. Do you have scientific back up for each one?

I think they are pretty current based on my research into my own desease. These still work.

Of course if anyone has some more current links please post them! That’s why I started this thread!

@kgitti thank you for the links! I saved them so I can watch later when my dog takes a nap. But I did see quite a few more on the YouTube page. How are you dealing CIDP?

Got my third infusion of Ritexamub (Ritexan sp??) for cidp which was most likely caused by the covid Vaccine.
UCLA nueromuscular doctors are great! It is working pretty well so far

SCIG treatments weekly, PT, Gabapentin, Ridalin. Anti-depression drug, dogs and good family and friends support.

I just saw this upcoming webinar from the Foundation for Peripheral Neuropathy that I think might be helpful for members with CIDP.

FPN Webinar: New Horizons in CIDP Therapy: Exploring Current and Future Treatments
Wed, Dec 4, 2024 2:30 PM - 3:30 PM CST

The Foundation for Peripheral Neuropathy is pleased to welcome Vanessa Tiongson, MD from Mount Sinai Medical School of Medicine in New York and patient advocate, Bob L., to talk about CIDP (Chronic Inflammatory Demyelinating Polyneuropathy).

During this one-hour program, we will hear first-hand from a patient who has had CIDP since 2007, and how he is managing living with this condition. As we explore this disease more, Dr. Tiongson will give an introduction about the disease state, including symptoms and diagnostics. She will also discuss CIDP treatment options, including newly approved medications and trials.

Registration: https://register.gotowebinar.com/register/5441578047087636311

I got an allergic reaction to the Covid vaccine inj - now it's so challenging I have hashimoto's Lupus , Fibromyalgia And polyneuropathy which is the worse of them all the numbness, tingling stabbing pain from soles of my feet to the top of my face especially numbness in my lips and cheeks I'm on cymbalta lyrica hydroxycloriquone no one knows how to treat me every month I go to rheumatologist every month and increase the meds but once I receive max dose and still in pain then what ?
I m taking supplements but still in pain every day hard to do daily activities and im 59 . I still have so much I want to do ? I'm worried i wont be able to travel or enjoy the small things in life

IT DID NOT WORK FOR ME, THE RUTUXAN MADE ME REALLY WEEK AND SICK FEELING. CIPD + FROM THE VACCINE . I see why Fouchi got pardoned by Bidden

IT DID NOT WORK FOR ME, THE RUTUXAN MADE ME REALLY WEEK AND SICK FEELING. CIPD + FROM THE VACCINE . I see why Fouchi got pardoned by Bidden. I also have been to UCLA and they are great, and are willing to admit it was most likely the Covid Vaccine.