brain bleed

Hello @ej0114 and welcome to Mayo Connect. While I don't have any personal experience with a brain bleed, there have been other postings regarding brain bleed in the past and perhaps someone will respond to your question. If you could share a little more about your experience that might help our community to respond to your question. For example, when did the brain bleed occur, how was it diagnosed, do you currently have symptoms, how old were you when this occurred? Also, have you sought a second opinion? If you are comfortable sharing this information perhaps a member of our community might be able to share their own experience with you. Best wishes as you seek answers.

@ej0114 I'll add my welcome to Teresa's. Connect is an online community where you can share your experiences, ask questions, get tips and find support from other patients. I'm tagging @tazi0 @lakelifelady and @fekind to bring them into this discussion as they have talked about brain hemorrhage or brain bleed here in the community.

We look forward to getting to know more about you EJ.

My brother in law had a stroke last year and had several bleeds but at that time they were able to operate and with extensive rehab he was able to recoup. This weekend my sister noticed he wasn't making sense and opted to take him to the hospital where they confirmed he indeed was having a stroke and after an MRI/CAT scan they found the bleed to deep to perform surgery. My brother in law is a 45 yrs old with two young children a 6 yr old and a 3 yr old. It is our prayer that we can find help someone who can operate or some other medical solution that will take care of the bleed.

I had two small brain bleeds after a car accident, which in part was a result of taking a blood thinner that was required after a heart attack and subsequent stent placed in my LAD artery. After remaining off thinners for several days during which time the bleeding stopped, I then resumed the med. The accident involved hitting and mowing down a tree so my neck was broken, 6 ribs, as well and created several cmpressure fractures all down my spine. A small bone chip in my R ankle was scraped off too.
A year since the accident took place in May. I continue to experience dizziness and bouts of inability to focus my eyes properly, but has diminished.Depression, difficulty concentrating and remembering and PTSD still remain with diminished impact on my life. My walk used to lurch to the right but that has improved also. Noise, noisy places, bright lights, people talking at once, sudden movements or noises, all bother me a lot. Bright sun gives me a headache. My startle resonse when driving or riding in cars is exagggerated. I used to have crying spells but an antidepressant has helped to stop those. And tiredness is a constant when trying to think, read, play games or fill out forms, or be the lively, engaging person I used to be.
So overall things are indeed improving, however more time is needed to continue the work.
Mary Jane Sieben

It has been two years now since the accident. I continue to be dizzy nearly every day and take a small dose of Lorazapam twice daily which helps some. Noise and noisy places where many people are talking at once continue to overwhelm me. My head feels like it swells up to a larger size and a loud buzz in my ears takes place. It is very tiring and small talk is difficult. Bright lights do the same as does bright sunlight. Concentration is better, but I am forgetful if easily distracted. Driving in a car is anxiety producing and I over react to perceived threats. Once when we came upon a bad accident on the roadway, I began gasping for breath like I was having an asthma attack. Then I cried for some time. This happened twice.
At first PTSD episodes bedeviled me.........now, not so much. I can use relaxation exercises and cognitive reframing to combat panic. Anxiety persists, although diminished.
I continue to play the piano, flute, paint and sing although all activities seem to exhaust me. Walking has improved but much diminished and it feels like all those terrible injuries healed together crooked and it hurts. I still go on no matter. I have accepted that my life has been impaired and so be it. I will do what I can as much as I can and enjoy what is.
@lakelifelady