Have MAC with pseudemonas

My Mom had pseudo. She was on Tobramyicin- ? Toby?? She acquired it in the hospital. She only had 1 1/2 lung & had chronic bronchiectasis most of her life.

@pamelasc1 I was prescribed two Weeks of Cipro and Tobramycin for Pseudomonas.
My Pseudomonas were in my lungs and seemed to also be in my sinuses. This combo knocked it back beautifully, but never rid me of the pseudomonas. I have since repeated the process a year later but was unable to do the tobramycin. Shortly after I stopped Cipro, I developed very sore/tender tendons in my arm, leg and foot. Be careful of Cipro, and Levo as fluoroquinolone antibiotics can cause side effects including tendonitis and sometimes ruptured tendons. If you are taking it, be very careful of exercise while on the drug. Read the precautions for the drugs.
Best of luck with your treatment.
Kate

@pamelasc1 , just saw your post. If you have pseudomonas in your sinuses, one thing that works well is the steroid rinse: for one month, you rinse your sinuses with saline + small dose of steroid powder twice a day, then for the rest of the year you rinse with saline + small dose of steroid powder once a day. You should ask your ENT about it.For my lungs, I am intolerant to Levo, so I just nebulize with 3% saline twice a day, has been working so far.
Best wishes of great health!

@pamelasc1 , just saw your post. If you have pseudomonas in your sinuses, one thing that works well is the steroid rinse: for one month, you rinse your sinuses with saline + small dose of steroid powder twice a day, then for the rest of the year you rinse with saline + small dose of steroid powder once a day. You should ask your ENT about it.For my lungs, I am intolerant to Levo, so I just nebulize with 3% saline twice a day, has been working so far.
Best wishes of great health!

Cathy - nebulizing saline has been my salvation from repeated respiratory infections. In my (non-medical) mind it just makes sense that if 7% saline is inhospitable to tough guys like mycobacteria and pseudomonas, it's probably protective against other germs as well.

Yes, I cared for sick grandsons for two weeks this fall without catching what they had - even though both parents caught it!

Sue, how many times a day within a one week period do you nebulize 7% saline?

Even though I was sensitive to most antibiotics, Cipro did not get rid of my Pseudomonas. I took Levaquin for years each time I got a chest infection, most likely building up some resistance to it.
My PCP says the Pseudomonas colonizes in the lungs.
My pulmonologist at National Jewish laid out a plan for me to just keep the Pseudomonas knocked back. This plan is.....
morning and evening: 2 puffs Levalbuterol inhaler; followed by 7% nebulized saline; followed by Symbicort steroid inhaler (low dose 85 mcg/4.5 mcg) 2 puffs morning and 2 puffs evening.
I used a SmartVest for 4 months, sustained spinal compression fractures, now switching to a wrap, not vest, by Electromed with settings very low to begin with. Am going to try the Volara which nebulizes saline and oscillates in the same treatment.
I do pharmacologic airway clearance morning and evening (in the plan mentioned above).
Mid-day I do postural drainage airway clearance with supine exercises, deep breathing, huff coughing, manual percussion, Aerobika.
So far so good.....no exacerbations for 1 year now.
I have started wearing a mask every time I go out, and especially when I walk my dog, just to keep the dust and particles out of my lungs. I wear an N95 insert anytime I am around people, as at a grocery store or visits to the doctor.

I have stable bronchiectasis, so unless I have an exacerbation I neb saline twice a week. I use an inhaler and do airway clearance every day.