Anyone had a liver biopsy for Primary Biliary Cholangitis diagnosis?

The other medication for PBC is Ocaliva. That drug made me sick and the doctor had me stop taking it. My diet is very much like your diet. Add low fat and gluten free.
I have a treadmill and try to use it 6 days a week.

I continue to be inspired by this group. I definitely think diet is a key factor in health. Exercise too.
Doctors have said that I will die or be institutionalized when I was born (down’s syndrome) at age 18 (nephritis) 22 (pericarditis), 37 (lupus) 62 (heart disease) and 67 (cirrhosis) but I am still alive and kicking. All except the last two were just totally wrong. When I do have a complaint they discount it and I am on my own.
I have been told that my blood pressure (135/75) is well controlled with medication and my blood pressure (135/75) was dangerous because I wasn’t on meds. It is hard, but I feel I need to ignore the negative and enjoy the positive.
I have biked around the world, run ultramarathons, born two kids in this old tired body and I refuse to fault it for showing wear.
Most of the things that are really health concerns for me are more likely due to bad medical advice. I think any liver and heart issues as likely due to daily tylenol, antibiotics and decongestants taken on doctor’s advice for years, than they are from being overweight as I age.
I also lost 30 pounds to help with liver enzymes and they did not get better and my doctor has not even noticed the weight loss.
Three out of four tests (enzyme ratios, MRI, INR) say I have fibrosis (still not good), not cirrhosis so, unlike my doctors, I am going to treat this like fibrosis and do all I can to get/stay healthy.

Greetings!
I hope you are doing well. Do you take medication for the PBC and how much? Are you feeling better?
Thank you!
Blessings!

@gema98

“don’t have bad symptoms which I guess is why my elevated liver enzymes were not taken serious by my Dr.”

I’m new to this site and awaiting a GI consult for chronically elevated liver enzymes (GGT >900 and ALP 700) for the past 6yrs.

May I ask how long were your enzymes elevated for prior to diagnosis? How long did it take to go from seeing a specialist to diagnosis and the start of your treatment? Do you have any side effects from your medication?

Thank you!

@justme74
In 2011 my Alp, Creatinine and thyroid TSH started going up. In 2014 my Dr started to tell me about it every 6 months but he wasn’t concerned. In 2018 I was sent to a gastrointestinal Dr and she said also said my bilirubin was high and I needed a liver biopsy. My husband of 50 years was fighting lung cancer, and I felt fine. He passed March of 2020 which was the beginning of Covid! I then moved and had the biopsy April 2021 and was told I had PBC, Cirrhosis. I was then sent
A hepatologist had an ultrasound, endoscopy and started on Ursodiol tablets.
I do not have any side effects from Ursodiol and my ALP dropped but never into recommend range. In April 2025 I was told my liver looked good, it had old scarring. I was eating very healthy for 4 years, lost 98lbs and was too thin. I was told I could have lean beef and pork occasionally.
I still feel good at 74, few aching muscles, and don’t sleep well some nights so more tired now.
Best wishes!