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Moderator

Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17 3:57pm

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 30 4:02pm
In reply to @judilafleur "I have been dealing with reoccurring tumors myself...I go in soon for a Biopsy removal. It's..." + (show)
@judilafleur

I have been dealing with reoccurring tumors myself...I go in soon for a Biopsy removal. It's tough.

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@judilafleur, how did the biopsy go?

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1 reply
judilafleur | @judilafleur | Oct 30 4:31pm
In reply to @colleenyoung "@judilafleur, how did the biopsy go?" + (show)
@colleenyoung

@judilafleur, how did the biopsy go?

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Thank you for reaching out!
I go on the 6th of Nov.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 31 3:18pm
In reply to @shamela "Hello. My husband was diagnosed with bladder cancer. He has been in constant pain for the..." + (show)
@shamela

Hello. My husband was diagnosed with bladder cancer. He has been in constant pain for the past 2x weeks. His kidneys got infected now he has 2x catheter attached untill he gets chemotherapy.
I hope and pray the treatment will help ease his pains.

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@shamela, I wanted to check in. How is your husband doing? Were they able to help him get rid of the infection in his kidneys and ease the pain? Has he started chemotherapy?

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kre22 | @kre22 | Oct 31 5:30pm
In reply to @kre22 "Thank you, very much for all you do in this support group . My bladder cancer..." + (show)
@kre22

Thank you, very much for all you do in this support group
. My bladder cancer was discovered incidentally to a routine urology check up. The cancer was removed the following day without complication. I have had cystoscopies every six months and once a year a CT urogram. After 2 1/2 years there has been no reoccurrence; but, I have been told that there is a high rate of recurrence The cancer was a non-invasive low-grade, urothelial cancer. My next six month follow-up is in early December.
PC

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Thanks for the “hug.” I appreciate it.
PC

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1 reply
kre22 | @kre22 | 6 days ago
In reply to @kre22 "Thank you, very much for all you do in this support group . My bladder cancer..." + (show)
@kre22

Thank you, very much for all you do in this support group
. My bladder cancer was discovered incidentally to a routine urology check up. The cancer was removed the following day without complication. I have had cystoscopies every six months and once a year a CT urogram. After 2 1/2 years there has been no reoccurrence; but, I have been told that there is a high rate of recurrence The cancer was a non-invasive low-grade, urothelial cancer. My next six month follow-up is in early December.
PC

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Thanks, Connie. I appreciate it.

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kre22 | @kre22 | 6 days ago
In reply to @kre22 "Thanks for the “hug.” I appreciate it. PC" + (show)
@kre22

Thanks for the “hug.” I appreciate it.
PC

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Have been busy and not too familiar with this support group writing and replying, but someone asked me about anxiety with my upcoming follow-up visit on December 2 at Mayo Clinic. Yes, I am concerned; hopefully, there will be no recurrence of my bladder cancer. Thank you all. Peter

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jimg56 | @jimg56 | 4 days ago

Hello everyone,
I have joined on behalf of my husband. He has non invasive carcinoma bladder cancer. He had a turbst in june and in sept the cancer was back. Drs have been slow with starting any treatments. He was suppose to start BCG treatments nov 14 but they do not have availability due to the WW shortage.
Next app is dec 3 @ sloan k. For cystocopy.
As of right now sloan does not have the bcg.
I am hopeful and will insist the alternate treatment i have read about on here is used.
Nice to meet all of you.
Catherine

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4 replies
ljashton | @ljashton | 3 days ago
In reply to @jimg56 "Hello everyone, I have joined on behalf of my husband. He has non invasive carcinoma bladder..." + (show)
@jimg56

Hello everyone,
I have joined on behalf of my husband. He has non invasive carcinoma bladder cancer. He had a turbst in june and in sept the cancer was back. Drs have been slow with starting any treatments. He was suppose to start BCG treatments nov 14 but they do not have availability due to the WW shortage.
Next app is dec 3 @ sloan k. For cystocopy.
As of right now sloan does not have the bcg.
I am hopeful and will insist the alternate treatment i have read about on here is used.
Nice to meet all of you.
Catherine

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Please ask about gem/doc combination treatment. It has been very effective for my husband.
I would imagine if cancer is observed in December, they will do another TURBT. You SHOULD start treatment no more than a month after that. I looked up Sloan K and the website states that the combo therapy is something that is offered.
My husband started off
with two rounds (12) of BCG which didn’t work for him, but the chemo did.
The doctor will give you choices and one does need to advocate for self.
Hope all goes well.

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1 reply
jimg56 | @jimg56 | 3 days ago
In reply to @ljashton "Please ask about gem/doc combination treatment. It has been very effective for my husband. I would..." + (show)
@ljashton

Please ask about gem/doc combination treatment. It has been very effective for my husband.
I would imagine if cancer is observed in December, they will do another TURBT. You SHOULD start treatment no more than a month after that. I looked up Sloan K and the website states that the combo therapy is something that is offered.
My husband started off
with two rounds (12) of BCG which didn’t work for him, but the chemo did.
The doctor will give you choices and one does need to advocate for self.
Hope all goes well.

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Thank you so much. I really appreciate your advice. Good Luck to your husband.
I will ask about that instead of bcg. I did hear it is better. Are there many side- effects?

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ljashton | @ljashton | 3 days ago

With BCG there were. Perhaps he’s use to meds but he just has fatigue and some increased urgency the first few days after treatment. He doesn’t complain about burning.

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