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Why Camzyos instead of surgery?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 20 6:47am | Replies (13)

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@karukgirl

@joycehocm, you have gotten some great advice from some wonderful members. We were all new here on Connect at one time, so don't fret about the newbie status!
@boatsforlife paints a pointed story about his journey and his fear of open heart surgery. No sane person would want open heart surgery! But for some Camzyos is not an option. Like @walkinggirl and myself. I was terrified, but had faith in God that I was lead to Mayo Clinic for a reason. I am so very grateful for the opportunity to be treated by the best surgeons and doctors and nurses and housekeepers and lab...well everyone! at the Mayo.
This is the link @boatsforlife mentioned. There is a lot of great information there:
https://4hcm.org
The suggestion for second opinion is also a sound idea. This is your life! And you deserve to know all you can and be the best informed HOCM'er out there!

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Replies to "@joycehocm, you have gotten some great advice from some wonderful members. We were all new here..."

Thank you! all good to know since I am headed to Hopkins for the first time tomorrow. I have been deep into the HCMA site already - I am a fairly obsessed researcher! Have a great day everyone - this group has been so, so helpful as I start this journey!