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Anyone have experience w FTD and seizures?
My husband has advanced Frontotemporal Dementia and has had seizures, both brain and behavioural, which require him to be on anti-seizure medication (Keppra). Has anyone else experienced this?
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Hi @dannymarcuccio
You said he’s got has brain memory & behavior but the big one (to me) of brain-seizure.
For me, I’ve lost and maybe loosing my brain-memory was cause by an accident, 12 years ago. My memory past was lost decades ago and it’s gone. The idea of losing mental-problems could happens worse and faster.
From my anti-seizure, it took me 3 years ago, 3 times a day of GABAPANTIN - thank about this - 3 years with zero-seizure… until then, I went to hospitals 2-3 times a years cause by seizure.
As far my brain is broken from 12 years ago. Doctors help my meds, going to different medical places, saying the right-way of what I need and in… WHAY? It’s not me; it’s my wife, who can drive and going to our drug-stores and paying our restaurants and going to our church and buying our food stores, fixing from pros fixing our water/electeisy and on. Before my accident, I did everything like working at my city; buying at our houses, and on and on…
Make sure, you need to take care of your husband and use the help of your families.
Thx,
Greg D. @greg1956
PS: Do you have part of your Italy family?
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2 Reactions@dannymarcuccio Welcome to Mayo Clinic Connect! I’m really sorry to hear about your husband’s seizures. They must be so difficult for both of you. I have the names of a couple of members that I will ask to join this conversation: @IndianaScott @boppie @maryvc and also another discussion group: https://connect.mayoclinic.org/discussion/frontal-temporal-dementia/
Are you your husband’s main caregiver?