Cervical Posterior fusion from C-3 thru C-7. Had this?
Has anyone had the surgery? I would like to know what they take to help with constant neck pain during normal activities?
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@ckmerc have any of your doctors mentioned the possibility of thoracic outlet syndrome? The symptoms your are reporting a classic for TOS that causes ulnar nerve compression. You bend your elbow which also stretches the ulnar nerve that may be compressed under the collar bone. I have TOS which did cause ring and pinky finger pain and numbness/tingling. With your punches to the air in exercising, this would likely increase symptoms for a person with TOS.
This of course causes a lot of confusion in diagnosing spine problems, and you wouldn't want to go through a surgery that may not help if the bigger problem is TOS. It is worth asking for an evaluation for TOS which would be a Doppler study to see if there are changes in blood flow with different positions when you raise your arm or turn your head, listening to the pulse in your neck while you turn your head, and it may show up on an MRI of the shoulder that shows the brachial plexus. With your past history of a diving accident causing cervical disc damage, that is also enough to cause TOS from the injury of traumatically jerking your neck muscles at the time.
If you do have TOS, you could spend a few months treating that with physical therapy and myofascial stretching to see if it helps. You may have problems in more than one area in spine and shoulder, but it would help to try to understand any issues separately. I started myofascial release therapy with my physical therapist years ago because of TOS, and I had spine surgery and carpal tunnel surgery. Carpal tunnel surgery did not cure all the pain because I had undiagnosed TOS. It is most often missed by doctors or misdiagnosed.
Here is some information on TOS. Mayo is an excellent place to diagnose TOS.
https://www.mayoclinic.org/diseases-conditions/thoracic-outlet-syndrome/symptoms-causes/syc-20353988
https://mskneurology.com/how-truly-treat-thoracic-outlet-syndrome/
Our discussion of Myofascial Relaese Therapy:
Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Have you heard about Thoracic Outlet Syndrome before?
I have not..... I will bring this up to my Surgeon tomorrow..thanks
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1 Reaction@ckmerc How did your appointment go? Will you have more diagnostic testing?
Hello,
Wonder if anyone has had their entire Cspine fused c4-t1 or similar. My scenario, at pretty young age I had very successful ACDF c5-c7 (due to many problems including chord compression, a reverse curve to my neck (common if have long straight neck, that my NeuroSpine surgeon straightening w the fusion by carving out the cadaver bone in a metaculios way). Over the years other areas of my Cspine has become worse. Radio Frequency Ablation by a very skilled Pain Mgmt doctor, worked great to rid of any pain years after the fusion. I never needed Pain meds etc. Over
last 9 months bad pain started creeping up and RFA or other non invasive procedures did not help at all. Recently (15 years after original c5-c7 fusion), imaging shows I have bad stenosis, the worse at c4-c5 with anterior/ posterior chord compression, among many other issues thoughout my Cspine, including Anterolisthesis with flexion at c4-c5 and c7-t1. Total mess. I am on my own w no help. I wonder how you function on your own, after having your entire neck fused? I did great after my first fusion, but this is far more drastic. I would appreciate any candor from others who may have had a similar fusion/ experience. Ty
I had anterior 4/5 last May and bones did not fuse. I now have a bulge above 3 and bulge as well as pinch at 7. I am preparing for posterior C4 to T1. Can you give insight on down time? How long out of work? I know the pain will not be fun during recovery, but I have hope this will relieve some of my daily pain and bring back some sensation in my right arm and hand. I appreciate all feedback. Thank you.
Have you tried MFR deep myofascial tissue release therapy? If not, you need to find a therapist and try that. I had to see Spine surgeries cause the first one wasn’t good enough and now I have a rod infusions from C2 C3 C2 from 2T1. Unfortunately it didn’t fix the pain. All the pain that I went in there with it did fix some. You can only tell sometimes by doing something what is right in hindsight. Indeed the surgery was necessary. It was unexpected that my bones fell apart in my neck because they were so soft, but it was unknown that a lot of my pain was specifically from my muscles, moving as a big brick on my shoulder, pulling on my neck. So in my case, I’ve gone about it in a backwards way, so I do all the my facial tissue release now which should’ve been done before. Oh well, my surgeon who is top drawer was not eager to do my surgery, but we had done everything together and I totally trust him, but I push for the surgery because I couldn’t stand the pain any longer. It’s not two years yet and I’m still recovering from the second spinal surgery because it involves my body being trained to accommodate the rod that’s in my back. I am severely round shoulder and the rod is straight. My orthopedic surgeon is straight up with me and he said it’s gonna take a while for my back to accommodate the Rod. there’s a possibility I have some scar tissue that’s also developing and there’s a possibility that additional arthritis has set in at C2. So I go to the surgeon every 3 to 6 months and we do x-rays and if necessary MRIs. I am 68 years old and I accept that this is part of my aging process and I wasn’t born with the world‘s best body. But I’ve increased my exercise tenfold and it’s really helping mitigate my pain and managing my health going forward.
Thank you for your response.
I have severe spinal chord compression, and vertibra slippage. Scary to even look at the MRI. I am far beyond traditional pain modalities and should have had surgery at least 6 to 9 months ago. I just wanted to know what it would feel like to have your cspine fused from c3 to c5 ( new required posterior fusion) plus c5-c7 ( previous anterior fusion). So total fusion will be c3-c7. I am still doing consults w Neuro Spine surgeons, since my original, amazing honest neuronspine surgeon is now 4 hours away.
Yes, I had that. But, no, you are not beyond MFR. My point being that if you have some MFR you will know if you are ready for surgery. There is no choice if your head CAN'T stay on your shoulders properly. That is what did it for me. I felt what it was like to have my head ontop of my neck for 2 days, but then it would "slip" off (as you put it). I don't think what you are asking is what you really want to know - correct me please if I am wrong or right:
You want to know if you will be eliminating your mobility with the added fusion, is that correct?
So I had c3 to c7 ANTERIOR fusion. IT WAS A MIRACLE feeling. But I had an accident when I was 7 and didn't now I've been suffering for 60 years with a screwed up neck. It was an AMAZING surgery. But it didn't work because my bones were too soft. So, a week later, I was back in with emergency posterior surgery from C3 to T1 with an ROD down my back. Now my mobility is limited -- HOWEVER - it is not more limited than where I started from at 67 with a really messed up neck. In the end, I gained no mobility. BUT, I have a lot less pain. Now the myofascial keeps everything else in line and helps tons. In my case, I am severely round-shouldered, so it will take a couple of years for my back to accept the rod. One highlight is that everyone notices how straight I stand. Not hunched over like the little old lady I became. I thank God for that PLUS! Sounds to me like you should be finding a good Orthopedic surgeon to consult with as well. I am at a great orthopedic department at UCSD with a fine cervical spine department.
I recently had a reoccurance of a neck herniated disk problem. 3 yr's ago i was lucky that 2 sittings of cortisone shots worked. Now, 2 sittings and no relief. So, i opted for surgery and 'long story short', I'm recouperating and very little neck discomfort. I take Hydorcordone 5 mg. when needed. 3 disks were removed... ACDF C4-C5, C5-C6, C6-C7, The Xrays look great.
I was again reminded by my doc. & PA that I was not to 'BLT'. Bend, Lift, Turn.
I wear the neck brace continually (now it's the soft brace) and I agreed to purchase and wear this battery powered Bone Stimulator, 4 hr's a day.
Progressing OK. I recommend again, no BLT! Good Luck.
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