I received my second dose of Adstiladrin on Friday, 11/1/24. I experienced fatigue, headache, body aches, and other symptoms, which abated after 48 hours. Blessings to your husband for healing!
Going for my first treatment 11/19/24 was given pills to abate bladder spasms was told side affects minimal.
Had BCG for 3 three years CIS popped up last scoping.
Had my 1st BCG 1 of 3 maintenance two days ago. Tolerated the 2 hour hold pretty good but since lots of spasms and frequent urination Anyone else have this. It’s much different than the 1st 6.
Had my 1st BCG 1 of 3 maintenance two days ago. Tolerated the 2 hour hold pretty good but since lots of spasms and frequent urination Anyone else have this. It’s much different than the 1st 6.
I finished my 6 induction treatments and was surprised when they said no maintenance treatments even tho that was the original plan
(cytology & cystoscopy both neg). Recheck with c&c every 3 months for 2 years. Not sure why treatment plan changed....
Had my 1st BCG 1 of 3 maintenance two days ago. Tolerated the 2 hour hold pretty good but since lots of spasms and frequent urination Anyone else have this. It’s much different than the 1st 6.
Thanks. Oxybutynen tried but I started it late on 1st day. More than anything it’s been the frequent urination that’s still hanging on. Doc says it’s normal so I guess I need to quit whining!
Hi,
My husband had Adstiladrin last week. 6 days ago. He is having significant fatigue, headache, chills, fever and body ache.
Has anyone here had those symptoms, and if so, how long did they go on?
Thank you.
Going for my first treatment 11/19/24 was given pills to abate bladder spasms was told side affects minimal.
Had BCG for 3 three years CIS popped up last scoping.
Connect
Connect
Like
Helpful
Hug
I received my second dose of Adstiladrin on Friday, 11/1/24. I experienced fatigue, headache, body aches, and other symptoms, which abated after 48 hours. Blessings to your husband for healing!
-
Like -
Helpful -
Hug
1 ReactionGoing for my first treatment 11/19/24 was given pills to abate bladder spasms was told side affects minimal.
Had BCG for 3 three years CIS popped up last scoping.
Had my 1st BCG 1 of 3 maintenance two days ago. Tolerated the 2 hour hold pretty good but since lots of spasms and frequent urination Anyone else have this. It’s much different than the 1st 6.
I finished my 6 induction treatments and was surprised when they said no maintenance treatments even tho that was the original plan
(cytology & cystoscopy both neg). Recheck with c&c every 3 months for 2 years. Not sure why treatment plan changed....
Hope your symptoms are better. Have you given feedback to your doctor? ASO (pyridium over the counter) & oxybutynin were prescribed for me & helped.
Thanks. Oxybutynen tried but I started it late on 1st day. More than anything it’s been the frequent urination that’s still hanging on. Doc says it’s normal so I guess I need to quit whining!
@dboh48, how is your husband doing? Have the side effects lessened over the past couple of weeks?
@rdbliven, welcome. As you prepare to start treatment with Adstiladrin in a couple of days, do you have any questions for fellow members?
I will let you know if I have any side effects.
Pill is oxybutyninttaken 3 days before and 2 days onand day after total 5