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Organ Donation and Transplant: What is Your story?

Transplants | Last Active: 5 days ago | Replies (94)

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@my44

@scottij
I just began posting on Connect this past July and I recently came across one of your posts from November of 2020 on the thread titled "Transplant anti-rejection medications. What's your advice?" I wanted to contact you so I thought I'd check this site that was new to me to see if you had posted your story here. And lo and behold...here you are!
First of all, congratulations on your life-saving heart transplant, and I pray that you are continuing to do well. I enjoyed reading your post and I love the poem you shared at the beginning as well as your new rule to live by at the end: Face reality as it is and not as you want it to be. The poem and your rule will now become words for me to remember and live by, as well,
I plan to go through this thread to read all of the interesting stories shared by transplant recipients. We all have different stories and have come to the same destination of transplant via different roads.
The reason I wanted to contact you is that in your post from the thread "Transplant anti-rejection medications. What's your advice?" you mentioned that you had named your new heart "Dave." I thought I was the only person who named their new transplanted organ. I had a kidney transplant 11 months ago and named my adopted kidney "Maisha" which means life. Maisha is treating me well, and I pray that Dave is treating you well. I call Maisha my adopted kidney because, unfortunately, her original host passed away and Maisha no longer had a viable home. So, I was offered, and I gladly adopted her. And I'm trying my best to be a good Mom to her. 😊
Scott, best wishes to you.

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Replies to "@scottij I just began posting on Connect this past July and I recently came across one..."

@my44 Tif, when my husband had his kidney transplant October 2016, we named his new kidney Kermit. It is a Gaelic name, meaning "free man". Seeing that he had been on dialysis for over 5 years, he was now released from that daily task, and indeed a "free man"!
Ginger

@my44
Many thanks for reaching out. I am coming up on five years with James, formerly known as Dave. I have renamed the heart as I found my donor family and am intimately acquainted with my donor. Naming the transplant made it much more personal for me. I felt a responsibility for taking care of the heart as it was certainly taking care of me. Now I am averaging 32,000 steps a day. This morning. I played my weekly game of basketball in the "ancient athletes league" I organized. As we all sat around at game's end, I patted my side and said under my breath, "Thank you, James". Without him I would not be here.

As for facing reality as it is. It is easier said than done. Subsequent chapters address occasional denials of difficult information with eventual acceptance. That was part of the struggle of giving up control; of which I apparently possess a high degree.

Congratulations on Maisha. You and I share a rare trate. We each carry two sets of DNA in our bodies. For me that has made me deeply aware of the interconnectedness of life. We are all in this together.

Best always,
s!
Scott Jensen