1. < Neuropathy
Profile picture for wideawakechas

Neuropathy treatments: How to avoid scams?

Posted by wideawakechas @wideawakechas, Oct 26, 2021

Has anyone heard of or tried a pill treatment called Vita Soothe Pro? Nerve Savior?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for natelew
natelew | @natelew | Oct 30, 2024
In reply to @cecelia19 "It has been a lifesaver for me too. How much do you take? Right now I..." + (show)
Profile picture for cecelia19 @cecelia19

It has been a lifesaver for me too. How much do you take? Right now I am on 300mg 3x/day but have been advised to increase to 600mg 3x/day over the next month to eliminate breakthrough pain. Wondering if that seems like too much.

Jump to this post

I too take Gabapentin 300mg 3x a day. I just had my EMG done on my lower extremities today, the upper extremities will be done next week. It’s a shame that so many people suffer with PN and it hasn’t been any new treatments that can relieve the pain we are experiencing.

REPLY
Profile picture for Jake
Jake | @jakedduck1 | Oct 30, 2024
In reply to @kgitti "FOR what its worth, I have CIDP, chronic inflammatory demialating polyneuropathy. I take a high dose..." + (show)
Profile picture for kgitti @kgitti

FOR what its worth, I have CIDP, chronic inflammatory demialating polyneuropathy.
I take a high dose of gabapentin and Topamax. I have no nerve pain. If I stop taking those, severe debilitating nerve pain returns, so they are working.
Just my experience.

Jump to this post

@kgitti
My Neurologist tried giving me Dope-a-max as it is often called in Epilepsy circles which I refused. I'm just curious, if you have experienced any ocular side effects from taking Topamax? I have known too many people that took it and ended up with serious visual defects and including blindness. Many seizure medicines cause visual side effects.
Thanks,
Jake

REPLY
1 reply
Profile picture for John, Volunteer Mentor
Mentor
John, Volunteer Mentor | @johnbishop | Oct 30, 2024
In reply to @heisenberg34 "I have severe PN. Walking any distance is very problematic. Sitting is painful. I have tried..." + (show)
Profile picture for heisenberg34 @heisenberg34

I have severe PN. Walking any distance is very problematic. Sitting is painful. I have tried some at-home exercises, but they only ramp up my pain. Does anyone out in Mayoland know if there are physical therapists who are able to treat patients with my affliction? Would like to be able to do SOMETHING.
Thanks to all. Have a blessed day!

Jump to this post

Hi @heisenberg34, There are some members who have found that Myofascial Release Therapy has helped. There is a discussion on the topic here:
-- Myofascial Release Therapy (MFR) for treating compression and pain:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

REPLY
1 reply
Profile picture for heisenberg34
heisenberg34 | @heisenberg34 | Oct 30, 2024
In reply to @johnbishop "Hi @heisenberg34, There are some members who have found that Myofascial Release Therapy has helped. There..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Hi @heisenberg34, There are some members who have found that Myofascial Release Therapy has helped. There is a discussion on the topic here:
-- Myofascial Release Therapy (MFR) for treating compression and pain:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Jump to this post

Thanks, John. I will look into it.

REPLY
Profile picture for mosby
mosby | @mosby | Oct 30, 2024
In reply to @suzirtist "The ONLY way I can exist is taking 4 Oxcarbezeprine a day and 2 Pregabulin at..." + (show)
Profile picture for suzirtist @suzirtist

The ONLY way I can exist is taking 4 Oxcarbezeprine a day and 2 Pregabulin at night! I've also had a spinal stimulator implant done...it helps a little.
Ive found nothing else at all yet.
God Bless!

Jump to this post

Did gabapentin work for you? I've never heard about Oxcarbezeprine. Thanks.

REPLY
Profile picture for kbirchem
kbirchem | @kbirchem | Oct 30, 2024
In reply to @cecelia19 "It has been a lifesaver for me too. How much do you take? Right now I..." + (show)
Profile picture for cecelia19 @cecelia19

It has been a lifesaver for me too. How much do you take? Right now I am on 300mg 3x/day but have been advised to increase to 600mg 3x/day over the next month to eliminate breakthrough pain. Wondering if that seems like too much.

Jump to this post

I take 1500 mgs a day . I was down to 800 mgs per day . I was unloading my truck . I twisted my low back and reinjured where i had surgery . Now my right foot is really miserable again .

REPLY
Profile picture for kbirchem
kbirchem | @kbirchem | Oct 30, 2024
In reply to @bigjohnscho "I am new to this forum although I have been suffering with peripheral neuropathy for 2..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Jump to this post

One of the biggest scams that I have seen is chiropractic clinics advertising being able to reverse neuropathy . They bring you in cheap . They then runs their voodoo tests . They then show you a plan to help you . They then hit you up for several thousand dollars . I had this happen to me . I went to Dakota clinic of Chiropractic . When I balked at the price . The female staff said and I quote " It is your feet that are going to get amputated . A real class act . Stay away from that clinic. Also beware when you see the ads running for this type of help .

REPLY
1 reply
Profile picture for flaherty2185
flaherty2185 | @flaherty2185 | Oct 31, 2024
In reply to @bigjohnscho "I am new to this forum although I have been suffering with peripheral neuropathy for 2..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Jump to this post

I am currently receiving Scrambler therapy, having completed 3 sessions of a 10 session regimen. Although still in the early stages of treatment, I am experiencing some increased feeling in my feet. I am hopeful that the full treatment will provide some level of relief.

REPLY
1 reply
Profile picture for heisenberg34
heisenberg34 | @heisenberg34 | Nov 1, 2024
In reply to @kbirchem "One of the biggest scams that I have seen is chiropractic clinics advertising being able to..." + (show)
Profile picture for kbirchem @kbirchem

One of the biggest scams that I have seen is chiropractic clinics advertising being able to reverse neuropathy . They bring you in cheap . They then runs their voodoo tests . They then show you a plan to help you . They then hit you up for several thousand dollars . I had this happen to me . I went to Dakota clinic of Chiropractic . When I balked at the price . The female staff said and I quote " It is your feet that are going to get amputated . A real class act . Stay away from that clinic. Also beware when you see the ads running for this type of help .

Jump to this post

I have run into those types of scams. My favorite was the chiropractor who was part of an organization called Disc Centers of America. First red flag: didn't like the quality of my MRI that had not shown anything terrible. Then, he sent me to an imaging center(they owed him a favor) for a CT scan, I had to pay cash on the spot. Second red flag: we reviewed the CT scan. "look at that bulging disc! Man, there's more above. Good thing you got to me when you did". Third red flag: Twenty or thirty decompression treatments (not covered by insurance for thirteen thousand dollars. Fourth red flag: Wait! If you sign up today, the price will go down to nine thousand. And. we can set up the payments right here. i said. 'no thanks".

REPLY
1 reply
Profile picture for santamonicamm
santamonicamm | @santamonicamm | Nov 1, 2024
In reply to @flaherty2185 "I am currently receiving Scrambler therapy, having completed 3 sessions of a 10 session regimen. Although..." + (show)
Profile picture for flaherty2185 @flaherty2185

I am currently receiving Scrambler therapy, having completed 3 sessions of a 10 session regimen. Although still in the early stages of treatment, I am experiencing some increased feeling in my feet. I am hopeful that the full treatment will provide some level of relief.

Jump to this post

I'm eager to hear how this works for you. I only recently heard of scrambler therapy, and it sounded promising.

REPLY
Please sign in or register to post a reply.