1. < Autoimmune Diseases

CIDP Support Group

Posted by cgrogers @cgrogers, Dec 18, 2022

I’m new here and I wonder if there’s a way to follow the CIDP support group as it seems to be a subset of Neuropathy?

Thanks, Glenn

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

lynn66618 | @lynn66618 | Nov 27, 2023
In reply to @lynn66618 "Hi, I was diagnosed the same way EMG/nerve study and the top end of normal proteins..." + (show)
@lynn66618

Hi, I was diagnosed the same way EMG/nerve study and the top end of normal proteins in spinal fluid. Currently waiting for IVIG insurance approval. Hope all goes well next week!

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Thank you!

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harley22 | @harley22 | Oct 30 1:08pm
In reply to @goldacharna "Well, finished my initial 4 days IGIV treatment yesterday, felt some tiny improvement after day 3,..." + (show)
@goldacharna

Well, finished my initial 4 days IGIV treatment yesterday, felt some tiny improvement after day 3, but yesterday after infusion and all day today it’s much worse, actually my symptoms are worse I’ve had it since the problem started. So upsetting. Has anybody had anything like I’m describing? Thank you in advance for your feed back.

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I also had no improvement after 8 mos of IVIG infusions.
They did nothing for me at all.
Very frustrating to say the least!

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