Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17 3:57pm

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

shamela | @shamela | Oct 23 9:13am

Hello. My husband was diagnosed with bladder cancer. He has been in constant pain for the past 2x weeks. His kidneys got infected now he has 2x catheter attached untill he gets chemotherapy.
I hope and pray the treatment will help ease his pains.

blazermaniac | @blazermaniac | Oct 23 6:25pm

In reply to @kre22 "Thank you, very much for all you do in this support group . My bladder cancer..." + (show)

Congratulations on no recurrences. Hopefully the BCG treatments will eliminate mine.

blazermaniac | @blazermaniac | Oct 23 6:28pm

In reply to @scott232 "Hi. Diagnosed high grade NIMBC last April. Two surgery’s and 6 BCG treatments so far. 3..." + (show)

Good luck in January!

scott232 | @scott232 | Oct 23 7:39pm

Thanks much

shamela | @shamela | Oct 24 4:50pm

Hello.
My husband was diagnosed with bladder cancer.
Mass in the bladder.
We waiting to start chemotherapy.
He has 2x catheter connected from the kidneys.
So there a sticky substance released thru the penis.
I would like to know what can it be.

trft | @trft | Oct 26 3:01am

First thanks for having this space. I was diagnosed with NIMBC after discovering blood in my urine about a year ago. I was diagnosed with Malignant neoplasm of bladder after I found blood in my urine. I’ve been in BCG immunotherapy with cystoscopy follow up. (My level of fear has moderated, but what can I say? It’s scary.)
Immunotherapy and cystoscopy visits are OK. It takes a couple of days before the pain from urinating subsidies. Anyway, I’m “happy” to be in maintenance mode.

Colleen Young, Connect Director | @colleenyoung | Oct 28 4:38pm

In reply to @blazermaniac "Hi all. I'm new to the group. I've had 2 surgeries within a year and now..." + (show)

@blazermaniac, I'd like to add my welcome. Using the group search function, I found this discussions related to Bacillus Calmette-Guerin (BCG) treatment where members are sharing their experiences:

- My journey with Bacillus Calmette-Guerin (BCG) treatment
https://connect.mayoclinic.org/discussion/first-bcg-treatment/
- BCG For Bladder Cancer: Anyone got experience to share?
https://connect.mayoclinic.org/discussion/bcg-for-bladder-cancer/
See all here: https://connect.mayoclinic.org/group/bladder-cancer/?search=BCG&index=discussions

Will you have the third surgery before starting BCG? How are you doing?

blazermaniac | @blazermaniac | Oct 28 5:35pm

In reply to @colleenyoung "@blazermaniac, I'd like to add my welcome. Using the group search function, I found this discussions..." + (show)

Yes, my doctor plans to remove the 2 small lesions and then six weeks later I begin BCG.

Thanks for the feedback @colleenyoung

Colleen Young, Connect Director | @colleenyoung | Oct 29 5:12pm

In reply to @trft "I’m new here. I’m here because I have bladder cancer and I’m in maintenance mode. Except..." + (show)

Welcome, @trft. You mention that you are in maintenance mode. Are you on maintenance treatment? What treatment? May I ask what type of bladder cancer you have?

Colleen Young, Connect Director | @colleenyoung | Oct 30 3:18pm

In reply to @kre22 "Thank you, very much for all you do in this support group . My bladder cancer..." + (show)

Welcome, @kre22. I think whether a cancer has a known high-rate of recurrence or not, the though of cancer coming back lurks in one's mind, always - sometimes in the background, sometimes more pronounced.

Do you find that you start to have to cope with "scanxiety" as your six month follow-up approaches? Do you have ways to cope, distract, accept?

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