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Newly diagnosed with AML (FTL3 TKD)

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (18)

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@loribmt

Hi @sonieaml, wow, that’s good news for you with your BMBX showing No FLT-3 or NBPM-1 mutations were found. That’s a huge relief being in remission!
The FLT3 mutation, in particular, is the tricky one and cells can remain ‘dormant’ or hiding out, essentially evading chemo. So your oncologist will be on the lookout for any trace of it returning for a certain period of time. They’ll continue to monitor you and make the decision on whether there is maintenance chemo or not. But reaching remission through your treatments is really encouraging. ☺️

Now you just need to get those slow poke blood numbers back up! You might see those numbers return faster now that your treatment is being reduced. Are you feeling ok? How’s your energy level?

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Replies to "Hi @sonieaml, wow, that’s good news for you with your BMBX showing No FLT-3 or NBPM-1..."

Thank you! My treatment has been reduced to 2/5 (Dacogen and Ventclexta (sp)).
Numbers coming up a little quicker. Next round will be 2/3 starting 15 Jan 25!
My energy is pretty good and I am happy to report I am working again. Just 4-11 hours a week but it gets me out of the house and active (driving cars at my local auto auction)! I feel blessed and grateful that my “new normal” life living with AML is so incredible!