Hello @johnnyvsn

I'd like to join @lisalucier in welcoming you to the Parkison's support group on Mayo Connect. You make some valid observations about PD. It is very common to have "off-times" with PD. It is often associated with the wearing off of medication. Have you noticed how long after taking your medicine that these off-times occur?

What you say about movement is so very important. In order to feel your best with PD, exercise and medication are the best combination. I always say that PD is not something that you can take laying down. I would encourage you to find an exercise routine that you can follow several days each week. The more you exercise, the better you will feel.

A lot of YMCA facilities will have "Pedaling for Parkinsons." This is a group exercise program done on stationery exercise bike. There is also Rock Steady Boxing which many PD patients enjoy, and it helps with symptoms. The important thing is to keep yourself as strong as possible. In addition to these exercise programs, you can also find free exercise videos on YouTube. Just go to YouTube and search for exercises for PD and you will find many that can be done standing or sitting.

Do you have a regular exercise routine?