There is no test for M.E./ Cfs. They say it is diagnosed by exclusion. If your tests are negative for things they understand they call it me/cfs. To me it says they don’t know what is causing the life altering symptoms and stop their search for possibilities. Like ME/CSF, EBV also is a mystery illness. My heart doc tried to get me seen at Mayo and I was turned down.
I think basically we are on our own. I am too worn out to chase help much longer. I now research to satisfy myself I have not missed something like the EBV blood test. More to help others than myself as I am getting too old to recover. Good luck