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@shari715

Hi Josette. I have had CTCL - MF. Treatment depends on the stage of your disease. I have stage 1A. This is the first stage of the disease. I was diagnosed by a dermatologist and I am followed by oncologist as well. I see my dermatologist frequently 3 to 4 times a year. Because of the stage my treatment is UV light 3 times a week. I have a light box in my house so it is convenient. I am not on chemo or any other treatment. This does not mean I will not need chemo. Please feel free to ask other questions by replying directly to me.

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Replies to "Hi Josette. I have had CTCL - MF. Treatment depends on the stage of your disease...."

@colleen young 11/2 year after with no symptom showing what do I do now? Cuz doctors have just told me to go on with life and just WAIT for it to come out again and this waiting is terrible

Shari 715, please tell me if electrophotophoresis was recommended.
That is when WBCs and RBCs get separated and the White Blood Cells get mixed with psoralen and get exposed to UVA light.
The UVB light therapy you are doing from home how did you learn how to do it?
Alice in San Francisco