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Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Blood Cancers & Disorders | Last Active: Oct 29 6:12pm | Replies (20)
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@josettecedo

I’ve had MF since 5/23. So many things have happened to me. Would like to talk to someone who is going through the same as me.

Thank you,
Josette

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Replies to "I’ve had MF since 5/23. So many things have happened to me. Would like to talk..."
lav3 | @lav3 | Oct 26 1:48pm

Hello
I am not sure if this platform is ok to disclose information but would like to ask you if you tried Brentuximab IV and extracorporeal electrophoresis?
Alice

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shari715 | @shari715 | Oct 26 6:09pm

Hi Josette. I have had CTCL - MF. Treatment depends on the stage of your disease. I have stage 1A. This is the first stage of the disease. I was diagnosed by a dermatologist and I am followed by oncologist as well. I see my dermatologist frequently 3 to 4 times a year. Because of the stage my treatment is UV light 3 times a week. I have a light box in my house so it is convenient. I am not on chemo or any other treatment. This does not mean I will not need chemo. Please feel free to ask other questions by replying directly to me.

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mll | @mll | Oct 29 5:19pm

I got diagnose on Dec 2022 . So not long ago. But no staging because they said only the skin was involve

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