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Sjogren's Syndrome?

Posted by di341 @di341, Mar 25 11:24pm

Hello,

Man, this aging process....... Thank you for taking time to try to help!

I have a positive ANA and run a higher CRP number, I have for many years. Other than Osteoarthritis, no other autoimmune diseases have been identified. My health is good over all.

Last month I had, what I refer to as a "flare". My whole body was in pain for over a week. I went into my PCP who I've had for decades. Once again she ran blood tests looking for clues.

My CRP had jumped from a previous high of 7 mg/L to 80 mg/L!!!!!!!!!

The only clue was the test for Sjogren's Ab. My result was Sjogren's Anti-SS-A was over 8.0, normal range being 0.0-0.9. The Anti-SS-B was normal range at less than 0.2.

My question is do you need both Anti-SS-A and B to have Sjogren's? Only my A is high. That in addition to a CRP of 80, which I know is very high.

Medicine is such a process of elimination!! Any thoughts you can share with me?

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esgsf | @esgsf | Oct 24 8:12am
In reply to @suetex "I also have Sjogren's and have been on Octagam for over a year. my rheumie took..." + (show)
@suetex

I also have Sjogren's and have been on Octagam for over a year.
my rheumie took me off plaquenil as she felt the IvIg should be sufficient. I also have muscle wasting and loss of balance which seems worse. Sence the plaquenil has a type of leg pain associated with it, she didn't want it clouding the issue. You might ask your rheumie about it.

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Thanks so much! I will check with my Rheumatologist about the medications. I know Plaquenil can have side effects with long term use for the eyes, but didn’t know about leg pain. Hope the Octagam works for you!

REPLY
artemis1886 | @artemis1886 | Oct 25 8:44am

The doctor aka rheumatologist had me see an ENT and get a lip biopsy since only one was positive on me. They take four saliva glands and send them off for biopsy. I got my results back confirmed Sjogrens. The procedure took less than three minutes. They numb your lip take the biopsy and two stitches.

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