Hi Lisa. Hopefully you will get some definitive answers once you meet with your Hematologist in a few weeks. Until then, it’s easy to google things but that can cause more anxiety without knowing exactly what you are dealing with. It would be helpful to know what your bloodwork showed. For example were your platelets high? Was your hematocrit high? I had high platelets and elevated hematocrit. I saw a hematologist and a bone marrow biopsy was performed which revealed Jak2 mutation. I was diagnosed with Polycythemia Vera. I take 2 baby aspirins a day and go for occasional phlebotomies to keep my hematocrit under 45. I consult with Dr. Tefferi from the Mayo Clinic. I have no other symptoms. Perhaps your symptoms will improve when you begin treatment for whatever your diagnosis is. Good luck to you and the most important thing to do is find a good Hematologist, ask questions and be careful googling information until you know more otherwise you will become overly anxious and overwhelmed. Best to you. Andrea