← Return to Newly diagnosed CLL How to interpret FISH results?

Discussion

Newly diagnosed CLL How to interpret FISH results?

Blood Cancers & Disorders | Last Active: Oct 23 9:44am | Replies (7)
Comment receiving replies
@learnknowgrow

Hello, Dharma -
I can relate to your worry and am glad you found this site as a resource. I hope that you and your family are finding all the right people and information to support you.

@lorimbt
My husband has recently been diagnosed (two weeks ago) with CLL, intermediate stage. His current doc was not forthcoming with interpretation of the FISH results. I am a deep-diver, and want the information to put my mind at rest and research accordingly. We are awaiting a second opinion appt. Meanwhile, is there a place I can locate what the data means? The results themselves via the on-line reporting seem unclear re variants, ATM, Trisomy 12, Deletions, and IGH. We received these last Monday and our questions are unanswered.

Both of us have family backgrounds in medicine (which we avoided ;), so are eager to understand and feel more grounded.
Thank you very much.

Jump to this post

Replies to "Hello, Dharma - I can relate to your worry and am glad you found this site..."
Lori, Volunteer Mentor | @loribmt | Oct 22 8:06pm

Hi @learnknowgrow. I love your @name…I agree, knowledge is power. There is comfort in being prepared by having a better comprehension of what a diagnosis can mean. But I will caution you about trying to interpret medical results for your husband without having that medical background you avoided. Don’t you wish you had that now?😅

Joking aside, sometimes researching on our own can lead us into grey areas where the information isn’t relevant to the diagnosis or a single result can be misinterpreted without factoring in all the related peripheral information, causing more stress than answers.
Without getting into medical sites where there’s a subscription fee a good source of articles & research papers can be found on Google Scholar. Could you also tap into your family’s medical backgrounds?

I’m glad to see your husband is having a second opinion. His current doctor sounds less than inspiring. It’s important to find a specialist with whom you have a level of trust and confidence.
Cll is typically slow to develop and according to several sources, remains one of the more treatable forms of leukemia. You might be interested in one of the many current discussions in the group on CLL. This is a reply to another member, @joeeduffy whose husband was diagnosed with CLL earlier this year. I put quite a few links in this reply that might be helpful. For context, you can read Joee’s comment right above mine… https://connect.mayoclinic.org/comment/1007740/

Has your husband’s current doctor discussed potential treatment options or is he in an active surveillance period?

VIEW AND REPLY