I tested positive for EB in 2016 however I wasn't notified. I then suffered incredible fatique to where I couldn't get to work for years. In late 2023 a Dr told me to try 8.5 to 15 mg L Methofolate. It has provided me some energy, mental clarity and focus I've been drained of. I've been complaining about Fatique for years to no avail. In 2023 with newly found energy and focus I started to seek consistently wit my Drs my Fatique issue. My Dr tested me for EB. I had 3 tests in 3 months. My results have been high. And we also discovered Id been tested in 2016 but not notified of results. Its been mentioned I may have Chronic EB. I cannot find an Infectious Disease Dr that will see me. At this point I've been told by an Immunologist I may not even have Chronic EB based on the bloodwork. Now I'm even more confused as to what to do next. My Drs office doesn't want to waste their time referring me to any more Infectious Disease Drs so now I'm really stuck. My test in early 2023 was:
EBV VIRAL CAPSID AG (VCA) AB (IGM)
59.70 H
U/mL
EBV VIRAL CAPSID AG (VCA) AB (IGG)
543.00 H
U/mL
EBV NUCLEAR AG (EBNA) AB (IGG)
48.30 H