Chronic Pain members - Welcome, please introduce yourself

Sounds like you had quite the time. Sounds like everything is all good now. My rep is a nice young gal who has been very helpful. Now I am faced with the decision of getting the permanent implant or not. My pain doc was only able to get one lead in due to build up of scar tissue. And that lead was only able to be placed up as far ad the T9, not to T7 as preferred. Mind answering a couple of questions? How much pain reduction did you get during the trial? Was it about the same with the permanent implant? I am in somewhat of a quandry.
Have a blessed day.

Hi 34! I got a lot of relief once the new gal from Boston Scientific took over for me. The temporary implant was fantastic. Because of of first reps "handy work" I did not get immediate relief from the permanent implant. Once the new rep step in and figured out what was happening it was improved by about 90-95%. I have CRPS and the disease has given me issues. Erin has adjust my implant several times. This has helped me a lot. She listens. She has never stood me up and promptly answers my text messages and returns my phone calls.

Most folks don't like this discovery that I have made but I am going to share this with you. Get off of all refined sugar. Fruits are ok. Read up on what sugar does to your body. No sugar Substitute with the exception of Honey . This has greatly reduced my pain. It has cleared up my Arthritis. Moles have disappeared along with two warts. I was abused as a child and scars that are over 65 years old are fading. (Nice to see thise reminders lightening up!) I have more energy. Just try getting off refined sugar for several months. To humor my sweet tooth I ate one piece of chocolate candy for a week daily. Then I went to every other day and the following week I got off of all sugar.

I do not take meds. After the Covid ordeal I do not have an ounce of faith in The pharmaceutical industry. I wish you the best. By the way; I searched out a Reputable teaching hospital to get my implant. I went to UNC. I discovered them by way of the Mayo Clinic. I called the Florida Neurological department with Mayo (during Covid) and they directed me to UNC. I have gotten off of red meats, I never was much for alcoholic beverages but I do occasionally have a glass of wine. I eat mostly fish and chicken. Obviously, fruits and vegetables. I do everything I can to stay away from dairy products and flour.

I hope this is helpful you and I wish you the very best.

I forgot this part...stopping refined sugar reduced my pain a lot!

Thanks. Appreciate the feedback. Glad you found relief. Not sure I could be as disciplined as you are. Will try my best with the refined sugar.

This is Walter, age 79 and for over 10 years, I’ve had constant headaches that one of my doctors diagnosed as CRPS. From my reading CRPS usually is in a limb. Have any of you had this condition in headaches? Did you ever find some relief?

Does anyone in this group use Marugiana for back pain? I used the medical one which is very expensive but useless. TY for your input.

Well and sorry for the bad spelling!

Shawnkthryn here, HI.
Gastroparesis means super slow - no digestion. Distensions gave me anal prolapse. Epigastric pain. I understand Artichoke extract can help - ?

Hello I am new to mayo clinic, and my reason for being here is chronic pain. I’m looking for ideas, advice, on handling radiation injury pelvic area, Post-cancer. Not treated at Mayo Clinic. The treatment was 11 years ago, So I’m not new to Pain.

I'm writing for a friend. Hopefully, he will eventually join the group. He was a healthy and active adult, and joined the military and served in the gulf war. He experienced several traumatic experiences, and was exposed to chemicals used in that police action. He has experienced skeletal pain, and the pain has moved into the mouth and groin areas subsequently. He has seen probably 60 medical professionals over the years trying to find relief. He is a gifted teacher, and when he is working with students during the day, the pain subsides, but in the evening, which is a different environment, the pain returns. As he works to provide leadership for his wife and two small children, the pain can increase. He is currently on strong medicine for the pain in his groin area, and he finds some relief for his mouth pain by drinking milk, and he wears a device in his mouth at night to help him sleep. The pain has just moved to different parts of his body. He has been in therapy over the years. I don't know if any of the Mayo clinics have teams that are successful in helping people like him. Or even someone who experiences this kind of neurologically or chemically induced pain to talk to. He is discouraged and just sees the pain increasing as it goes into different pasts of his body. As you probably know, the pain just wears you down and you lose hope.