Treatment for chronic Epstein-Barr virus (EBV)

Hi Kristina! Definitely locate a good hematologist even if you have to travel. Have you had a flow cytometry test and a EBV Quantitative blood test? In my case that, along with a bone marrow biopsies, helped get my diagnosis. A year ago I ended up getting four infusions of Rituximab and am in remission from EBV+ low-grade B cell lymphoma and now feel great. Hugs and prayers coming your way!

I had Mononucleosis when I was 16 and was very fit. I was hospitalized for dehydration and missed a lot of school. I have never been the same. I had a relapse 22 years later after giving birth to my second child. After followed a very strict healthy diet I was able to get out of bed and return to work for about 5 years. Then I had to go on disability because I was exhausted. Finally I found an MD who diagnosed my Hashimoto’s thyroid problem and pancreatic insufficiency I started to do better but never felt whole. 28 years later I have had my third flare up and am desperately trying to get out of it. I will try the protocol recommended here and let you know how it works. So little progress in all these years. My primary doctor thinks I am just depressed. There has to be an answer!

I have been suffering from EBV for 55 years. I have been diagnosed with Mono like 100 or more times
6 years ago, while listening to a lecture I learned about monolaurin. So, I did my own research, then started taking it myself.
From what I understand, monolaurin penetrates the membrane of bacteria and viruses that have a lipid membrane. EBV is one, along with most cold and flu bugs. Needless to say, I have not gotten sick since I began take it.
Do your own research into monolaurin, it is cheap at only $15 a month to keep healthy. I mean $15 a month on its own is not cheap, I get it, but I no longer have to fork out hundreds each month for pharmaceuticals either. So, for me hundreds each month vs. $15, Monolaurin is much cheaper, and I am healthier.

I have taken that before when diagnosed with auto immune diseases and had forgotten about it when I reached a better level of health and my integrated medicine Dr. Told me she couldn’t help anymore. I still had not reached my pre EBV energy levels. I’m still looking for that muscle strength and energy restoration. I never caught anything else while I was on the Monolaurin either.

I am curious, why did you decide to stop taking the Monolaurin?
When I learned that my Step-mom stopped taking it, she said it was because she was not getting sick anymore so she does not need it.
By the way, I also have multiple autoimmune issues, Hashimotos, and Mixed connective tissue disease are the worst of them. To me, while I know that monolaurin will not cure these autoimmune issues, not getting sick from other viruses or bacteria for that matter is still a huge benefit.

Hi,

What brand of Monolaurin do you use?

I have been using the Solaray brand for 6 years now
I know that the lauricidin brand is considered the gold standard, but it is way out of my price range

I stopped it because I had improved a lot. Also, I was taking a lot of supplements and paying out of pocket for a functional medicine doctor and my husband was very stressed about all the costs over the years. I had been to a nutritionist and homeopathic doctor at first and he got me out of bed with a very strict diet but missed the EBV component and the low digestive enzyme levels. I really didn’t know which supplement was doing what and then my fm doctor retired.

Diet changes helped me a lot. No gluten, dairy, soy, corn or sugar of any kind. I have also chosen to exclude anything with lectins. Also, organic as much as possible. It’s hard at first but it got me out of bed and back to work for a few years. It’s been a 28 year battle. Also, if you have any thyroid antibodies you need replacement and get you digestive enzymes checked. EBV cause pancreatic insufficiency.

I know what you mean about expenses
I am hanging by a thread here myself