I hear you, believe me @burned2much. I bought a condo two months ago and have to sell it because so many noises in the building and outside are setting off my symptoms. Burning, numb, facial pain left side. I am not chasing this down because I know noone will have answers. I have a good relationship with the nurse practitioner at my PCP and made an appointment with him for next week to discuss strategy. Mass. Eye and Ear wasn't that helpful but I might seek another CT. I cannot do contrast so usefulness is limited. Distraction helps me. I have baclofen, hydrocodone and clonazepam around but don't take the first two and rarely take the clonazepam , when the pain makes it hard to sleep. Meloxcam was a nightmare for me.

Mine is so noise related. It sounds like yours isn't. Are you on any new meds?