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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)Comment receiving replies
Hello! I have been reading these post for almost one full year. THANK YOU!! They have been so very helpful...more than any doctor. I too have been battling ONE full year of hell with grovers disease. I really wish this website was more user friendly!!
I’ve learned so much so from this group and the Facebook group. I’ll post my experience from start to finish on a new post so it’s not embedded in this thread only.
Take aways, I also have allergies. Only had seasonal allergies before now. After the extended allergy test I learned. I’m allergic to:
1. Carba Mix - pesticides, fungicides, latex, parabens (preservative) plastic...all things containing “emollients” which are typically in topical steroids
2 textile dyes - yes, you read this correct. Clothes are dyed in artificial dyes and then treated with formaldehyde!! So not only is texture important so is the chemicals that are on the clothes. Textile dyes take 6 months to get out of your system FYI. Super fun on top of GD 😂
3. Lidocaine- very interesting as in many lotions
Replies to "Hello! I have been reading these post for almost one full year. THANK YOU!! They have..."
@ansleyms Welcome to Mayo Clinic Connect, a place to give and get support.
It sounds like you have a lot of information to share and that you get a lot of reading the posts here on Connect.
Hi friend, we have many of the same chemical allergies. These manifested one year ago for me and have taken over every area of my life since then. I can only wear cotton and look for pima cotton mostly. The prettiest and softest pima clothing is at Peruvian Connection. PACT, Cottonique, Garnet Hill, and Company Store have a lot of pure cotton clothes, linens, face masks, etc. All of these are online shops. Back to chemical allergies, are you aware of ANY possible way to reverse them or minimize them? I can't imaging suffering my whole life with them. Best wishes, Julie
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I would appreciate your history like others will, we find strength and learn from each other.
Our history is similar in that until middle age I only had seasonal allergies, severe at times. Now like you I have ACD as well as GD and surprisingly my seasonal allergies are minimal, as if I have outgrown them. I hope your initial breakout period will be coming to an end, as I mentioned mine was for one full year.
I also am wonder if cilantro benefited me and others because we were not in our initial breakout period, but were dealing with our sequential breakout when we started using it. So if cilantro isn't helping you now and you go into remission for months and then GD does it's typical cyclical return you should try the cilantro again.
You also mentioned the time period of 6 months for chemicals and allergens to get out of our systems. I found that especially true with allergic fibers and chemicals, especially the rubber allergy. My foot pads burned for at least 6 months after all allergic contacts were eliminated. Partly because I I didn't think about the rubber residue on allergen free flooring based upon contamination from the soles of shoes and I would walk barefoot on these floors. I am extremely careful, yet if I find myself in a situation I wasn't prepared to protect myself from, for example a doctor's office with blended fiber chairs that contain MBT (my rubber allergy) and my chemical allergies to wrinkle free, scotch guard or fire retardant materials I find I can sit in these chairs without noticing itching. Befoer in 10 minutes I would start itching. I'm not saying these are not off gassing into me or not transferring though my skin, just that it's not immediately noticeable. I still avoid though. My last Patch Test showed a reaction but milder to MBT and to certain adhesives which are in the fabric protectors. My inflammation is down in my body and less reactive because of all my avoidances.